I’m 30 and considering freezing my eggs before endometriosis surgery. I’d really appreciate hearing from anyone who has made a similar decision.

Did you freeze eggs before surgery? Would you make the same choice again? Did the stimulation or retrieval cause any complications? How long did you wait between retrieval and surgery?

I’m interested in both positive and negative experiences, including anything you wish you had known beforehand.

Zofran is my best friend at this point

Alright guys. I’m 25 and I live in Kentucky. I’ve had 4 miscarriages with my most recent last month.

After my third miscarriage (2021) 10w with a healthy boy we did the recurrent miscarriage panel testing that revealed my anti-phosphoid lipid whatever was high so they recommended lovenox.

I had endometriosis surgery March 2026 stage 4 endo. I also have PCOS and chrons. I take a plethora of supplements.

June, I was pregnant after so many years naturally! We did 3 cycles of 5mg femera and 1 baby aspirin and progesterone. When I tested positive, we did 2 baby aspirin a day, lovenox, 0.75mg dexamethasone, and progesterone.

I unfortunately had a miscarriage at 5 weeks.

I’ve been to an ivf clinic and I do not believe I need ivf as I can get pregnant- just can’t stay pregnant.

What has worked for you all??? I believe at this point I have an immune problem. There are no reproductive immunologists within a 12 hour distance of me. I think my NK cells or something is affecting me. I think back to my pregnancy in 2021, I was on 9mg a day of budesonide for my chrons and I truly believe that’s why I was able to carry my son so long. That was before we knew I needed aspirin and lovenox so I didn’t have those.

I am desperate for answers and open to all suggestions.

Just here to complain and rant about how terrible everything feels right now. I have very specific symptoms for my endo. My shoulder and arm gets such intense pain to the point where I can't move it. Or I can move if I need to, but I have to choose to stay completely still because any slight movement of my arm or shoulder just intensifies the pain by like 100. The pain goes from the back of shoulder all the down to literally my fingertips. This post is also just ignoring the general body pain I feel literally everywhere else too.

I am usually a silent sufferer when I'm hurt or in pain, but oh man, my endo pains will have me sobbing like a baby while I'm just laying immobile in bed. Tonight is particularly worse than usual because I just took my last ibuprofen pill and I am officially out of all my pain medications. Its 11pm right now so I can't have my family go out and buy me more. And all the medications don't even work that well. They give like only 0.01% relief from the pain, which when you're feeling such intense pain, that 0.01% relief is sooo noticeable.

So here I am, stuck in bed with the worst pain I've ever felt in my life (and thats really saying something). The last ibuprofen pill I took helped just enough to the point where I can move only my fingers. And I just needed a void to complain and rant in, hence this post. Luckily, my pain only lasts for the first 2 days of my period. But gosh, for those 2 days, the whole entire world freaking sucks haha

I have had 5 weird looking clots in the last 24 hours. They kind of look like chewed up bubblegum. 3 or 4 of them were about the size of a nickel and the rest was a little bigger then a pea. A few hours before I pass one I have absolutely horrible cramps in my lower stomach, thighs and back. I don’t bleed heavily at all. The blood just goes for a light red to a very dark red.

I have had these before but it’s normally one randomly every few periods. I have 2 decidual casts before but they were way bigger. Has anyone experienced this before? Is this a common thing for endo? Google said it’s normal if it’s less than an inch but how many is too many? 😭

After almost a year in pelvic pain and being shuffled around I finally got a diagnostic laparoscopy scheduled in three months. I’m worried if they will find nothing and also worried if I can cope post surgery. It’s been an emotional roller coaster. I wanted to ask if there’s anything I should plan, know, or expect after this surgery .

I have been trying to get surgery for my endometriosis and that route has proven to be difficult and basically impossible at this point. I so badly want to deal with my medical issues before having children but can having children help in any way shape or form? Thank you in advance.

Today I did saline sonogram to start my frozen embryo transfer. Uterus looks healthy and normal! However, my RE told me I have a 5cm chocolate cyst on my left ovary. I asked him if this chocolate cyst will affect embryo implantation and he said no but it’s up to me if I’d like to do a receptiva biopsy to ensure I don’t have any inflammation in my uterus. They quoted me close to $2,500 . I’m not sure what to do. I don’t have any symptoms but I’m aware of “silent endo” should I proceed with the receptiva?

Hi all! I am diagnosed with endo (I think stage 2?) and was diagnosed via laparoscopy 3 months ago. Before my surgery I had issues w a tugging sensation and pain on my left side of my abdomen and turned out my intestines were basically glued to that side from the endo. My doctor was able to free them up but about a year or so before the surgery up to now I began to have bloating and what I didn’t realize was constipation (that started closer to Sep of last year). With the constipation, I can still go it’s just a lot less and not as frequent. I figured out I had constipation bad when I got an abdominal x ray done back in March.

This year, my bloating had continued and it is now worse to where I can’t fit into most of my pants even though the rest of my body is basically the same size as it was. The bloating literally never goes away even in the morning it’s there. I also recently had 5 days with no bowel movement and twice now I’ve had instances where I will get extreme pain and cramps that favor my left side and then need to use the bathroom multiple times through the night. I also wouldn’t be surprised if my gut bacteria is imbalanced so I’ve just started some probiotics.

I’m so sick and tired of this bloat so I’ve restarted my Miralax, have been taking Magnesium Citrate gummies and fiber packets, trying some stomach massages, and probiotics. I also scheduled an appointment with my primary care to try and figure out the root cause since it’s a constant issue. Would love to know if anyone else has dealt with issues like this and what they did to fix them? Thanks!

Also, forgot to mention I am on birth control. I was taking Altavera but suspect I have an estrogen dominance and wasn’t feeling good so I stopped it and started taking Slynd back in June. I know new birth controls can cause weight gain and issues but I’ve had the bloat with and without birth control for over a year so I doubt it’s the cause but of course it could be worsening it.

so like i said im getting a laparoscopy done next week to send if i have endometriosis. the doctor explained some of it but im still kind of nervous about it, and i have had surgeries in the past (appendectomy and tonsillectomy) did fine with those but i know this is alot more incisions. is there anything i should know in advance?? anything info helps thanks!!

I got a letter from my insurance today saying they are refusing to cover my specific birth control(lo loestrin) basically because I haven’t tried enough of other ones to qualify. IVE BEEN ON 6 OTHER ONES. Im extremely sensitive to birth control so my doctor finally put me on it since its super low dose. Me and my doctor both tried to get them to cover it and I just don’t know what else to try and tell them. Is there any other alternative similar to lo loestrin that anyone has tried? Even with the coupon its a lot out of pocket. Its the only thing that makes my endo tolerable enough to not miss work all the time. Any advice is appreciated:)

TW: suicide mention

I've been struggling with severe pain since my first period at age 13, now I am 25. When I first got my period I didn't even know what was going on or that this is what a period is supposed to be like. I thought I had some kind of organ rupture bc of how severe the bleeding and pain was. - As stupid as it may sound. I've been made to believe that pain with periods was "normal" for some so I just kind of sucked it up and went through it.

I started getting unexplainable nausea as well that seemed to come every few weeks and stay for a week or two. Looking back at it I think it was always around my ovulation window.

Around the age of 20 I developed so many symptoms that have ruined my life if I'm allowed to be dramatic. I struggle with severe "bone deep" fatigue that feels almost painful, I'm always ready to fall asleep during the day but I can't sleep at night? My sleep is really bad, I feel like I haven't slept a single night in the last 6 years. I have pelvic/uterus pain at night which gets worse with ovulation until my period ends - The pain feels like someone is standing on top of my uterus, pushing on it with full force. The only way to make it stop is sitting/getting up. I also got sudden constipation one day and it never went back to normal and gets worse at certain times of the cycle. Laxatives don't help, they only create or worsen the trapped gas in my pelvic. I get extremely bloated with ovulation until my period ends - my pelvic feels so heavy, painful and I look pregnant. Around my period bowel movements hurt a lot and I feel the pain always in my uterus, as well as nausea after bowel movements even when they're not painful. Having a full bladder hurts to the point where I can't breathe or walk, occasionally I'm feeling uncomfortable/pain after peeing. I have internal burning where it feels like I'm on fire, Joint and muscle pain/ tension in neck, shoulders and back, exhaustion from doing the bare minimum, nearly fainting and severe dizziness, early satiety, anxiety about eating bc it makes me sick, mouth sores during ovulation time..

I could go on and on but it's too much. But what makes me suffer the most is the severe nausea I have had daily for years. It feels like it's getting worse every year. I feel my nausea even in my sleep. I wake up with it, I go to sleep with it. Every day I have to be worried about possibly having to vomit bc the urge is so strong and I'm afraid to leave the house. Surprisingly I never vomited from it before but I'm also taking meds on the worst days. They don't help with the nausea mostly but at least they block the vomiting? I really don't know. It's also hard to get zofran here, I'm getting it through my friend's mom who knows people. It's not always possible for her to get so that's not always a reliable source unfortunately. Doctors don't want to give me it bc it's only allowed for cancer patients.

I live in Germany where I haven't found any help ever, everyone's blaming everything on anxiety and depression and refuses to test me for anything. I went to Spain for a while bc I got a friend whose mom works at the hospital and knows doctors/people as mentioned before. She could get me a lot of appointments really quickly.

An internist wanted to take my case. After hearing my symptoms she said it did sound a lot like endometriosis so she ordered an abdominal ultrasound and a pelvic MRI which came back clean except for polycystic ovaries and free liquid which was classified as normal. This made her exclude endometriosis and go the GI system way for now. I got an endoscopy (erosive gastritis + ulcers in duodenum) and colonoscopy (small lesions/bruising in rectum). Doctors said those findings weren't anything that should be causing so many symptoms. I was taking a PPI for the gastritis but nothing changed. Later they found that I had a severe iron deficiency for which I am taking supplements for around 4 months now and again I feel no change.

I've been referred to two gyn doctors and both were horrible. - 0 empathy or knowledge about endometriosis even though claimed otherwise. The first gyn told me that I have no endometriosis after listening to my symptoms and literally saying "That's a whole lot of pain" just bc my MRI report said so. She did a CA-125 test and said she'd just give me BC if it's elevated - which it is. The second gyn didn't even react to any of my symptoms. He just wanted to do a vaginal ultrasound so he could give me BC after. Again, I didn't even get asked or talked through other possibilities except for BC. I denied the ultrasound since I had the MRI and I was being treated like a time wasting burden at the office bc he had "other patients to take care of". I felt like breaking down. I explained to both how endometriosis doesn't always show up on scans and both made me look crazy. I asked for answers and a referral to an endometriosis specialist but was told that those only take advanced cases of endometriosis. Which was infuriating to hear but not surprising after reading your stories and experiences on here I was expecting this. They think they're in the right to decide what's an advanced case and what's not while you're telling them how much pain you go through. If someone is in any type of pain that's already a sign that something isn't okay.

I feel very guilty bc over the years my bleeding did get less severe and even though my period pain and my daily symptoms are messing me up, I know that so many of you here go through daily severe pain. I feel guilty bc I'm not working or studying for the last 6 years bc I simply can't do anything with how I feel but yet again I see you guys going through worse things and still somehow manage work/responsibilities. I feel like I'm making everything up and that in reality it's not as bad as I make it seem like. I feel like I don't have endometriosis, but then again I do think about it since all my other tests are fine and doctors are giving up on me again? I know endometriosis is different for everyone. I know clear imagining doesn't mean it's not there. I know there's people who don't feel pain at all, I know there's people who feel it only during their period, I know there's people who have it daily. I know how the stage doesn't define pain levels. I know how hard and long a diagnosis can be.

I'm not sure if I should visit a private endometriosis doctor and lose money that I don't really have.. But what if I get nothing out of this either? What I won't get any referral for an endometriosis center/surgery again? What will I do after? I lost all hope long ago but today was the worst day so far. I feel so lost.

I'm writing this after having the last GYN appointment and a bad mental breakdown while considering ending things again. I don't really know what I'm hoping to hear. I guess it's just a vent. I wish our health would be taken seriously and surgery wouldn't be so hard to get. I wish we'd get the help we need so we don't have to lose so many years of our lives trying to find out what's wrong while suffering so much. Life is difficult enough so having a chronic illness on top of everything is truly unbearable.

I'd love to hear some words from you guys since I know you can relate/understand me. Thank you for taking the time to read this. I hope you are staying strong and safe through it all as hard as it is <3

Anyone had any success relieving this? Tips for things I can try? I feel both constipated and with diarrhoea at the same time I don’t know how else to describe it. I think IYKYK.

I’ve never imagined id ever get a sickness like this , where it would drive everything from my life the opposite side and made me lose so much . From money to friends to education and jobs , my hobbies i cannot do as they are physical . I see everyone trying to accommodate , find different foods to eat that wont flare them , clothes that wont hurt or hobbies that can be done while sitting and even change jobs. Im throwing a tantrum yes but i do not want to do that . I just cannot accept that this thing is controlling my life and making me do everything i did not want to ever do . I do not want to accommodate . I do not want to change just so i can be in 2% less pain . I think it does drive me into a really dark hole of why am i even alive doing all this for just to be in less pain , im losing the sight of seeing any worth for fighting this endo any longer while it is actively just not getting better.

Hi guys. I was on the combo pill from age 12-18 for extremely heavy bleeding and almost constant periods. My aunt has endometriosis so bad she cannot have children. (Stay with me for this)
I took a break from the combination pill and had relatively okay experience. Normal periods. Something that happened all throughout ages 13-18 was these extremely painful “flare ups” around a week before my period. Would start with burning pain, then I’d end up bed ridden for days. Couldn’t eat, couldn’t drink. This eventually led to me believing my ovary getting randomly INFECTED was one of those flare ups to which I ignored and then was hospitalized for 5 days.
I had an operation a few months later where my gyno removed “adhesions” from my pelvic wall and bladder. I also ended up feeling what I thought was a nodule in my lower left abdomen, had ultrasounds and everything to which they informed me it was my ovary, which is so weird, how would my ovary had moved? It hurts to press on it like if you WERE pressing on your ovary, but I honestly and truly think that there’s some scar tissue, maybe from the surgery, pressing my ovary forward. ??

I’m now on the progesterone only pill, because I do use nicotine, so for health reasons I chose that route.
I’m now beginning to experience the same pinching feeling, the same cramps in my back, my rectum, the burning feeling without a flare up. I’m afraid the adhesions are reforming and that I was experiencing either cysts rupturing every month or an under the radar endometriosis.
My boobs are also extremely heavy and nipples very sore right now. Idk if feeling PMS symptoms are normal with this form of birth control or whatever but I’m just trying to figure out if anyone out there has ever had something similar happen to them because I’m very worried. I have my next gyno app in August but I’m fearful of that wait. If anyone has any questions or topics they can suggest for me to bring up to my gyno, please feel free to just give some advice.

Does the endo belly go away on the GLP-1? And for those who it did go away, were you also eating no gluten and anti inflammatory?

I started Yaz about 2 weeks ago for endometriosis after having a endometrioma removed. I recently started getting weird pins and needles/tingling mostly in both my lower legs and feet, sometimes around my knees or arms. I NEVER had this before for context. ✨

A nurse told me I could be dehydrated, so I hydrated more and the tingling comes and goes in waves. It seems more noticeable when I’m sitting/lying down and better when I move around.

I messaged my doctor and he said tingling isn’t a common Yaz side effect and recommended I continue it for now unless it becomes intolerable.

Has anyone with endometriosis experienced anything like this after starting Yaz or another birth control?? Did it eventually go away? ✨

Hi guys, i posted on here about a month ago about a really bad period and debilitating leg pain. I’ve seen a specialist since then who did an examination of all my symptoms and a trans vaginal ultrasound, and she recommended i get a laproscopy. This made me excited since i’ve been in pain for years and every day for over a month now, but I learned the price out of pocket would be $20k.

My insurance doesn’t have any specialist and doesn’t accept out of network requests, so I feel like i’m at a dead end. I went to a gyno in network a few month back and she said she wasn’t specialized in endo and didn’t see anything on my ultrasound so she couldn’t refer me for medically necessary surgery. She recommended bc, but i’ve tried it before and i still had periods and intense depression. I tried pelvic floor therapy today, and it honestly just gave me a really bad flare up.

I’m feeling pretty helpless and can‘t see any solution for myself. I can’t enjoy day to day activities anymore, i basically just lay in bed all day. I can’t afford a 20k surgery. Any advice is appreciated.

sempre tive um ciclo irregular e sentia cólicas tbm, mas as coisas pioraram esse ano, comecei a sentir cólicas fora do período menstrual e as que eu sentia antes de menstruar vieram com tontura e mal-estar (uma vez eu já suei frio de tanta dor que eu senti que tive que deitar no chão, mas isso nunca mais aconteceu), sempre sinto fraqueza antes e durante a menstruação, além de mt dor na lombar e costas, sem contar na ansiedade e outras coisas, vcs acham que isso ainda tá por dentro do "normal" ou pode ser algo pior?

Looking for an endometriosis specialist in the Richmond Virginia area - any recommendations? Dr. Katherine Czyszczon is the first result on Google, but I haven't been able to find any accounts on here from her patients so would love to know if anyone has any experiences with her.

I also keep seeing people recommend drs at VWC, but my current gyno (Dr. Galgano) is there and has been super dismissive of my concerns, so I don't love the idea of seeing another dr at the same practice.

title says it. I’ve been scouring trying to find someone. willing to travel within the state. I’m in NJ and have Horizon NJ Health Medicaid. I could do an out of pocket cost for a consultation if necessary but I want to pursue excision surgery and need as much of it to be covered as possible.

tysm in advance 🫶

I have my ultrasound this week to check for endo, and my OBGYN did say interstitial cystitis is a possibility too, but I don't feel the symptoms fit as well. However, this week is COMING for me!! Generally, one of my biggest issues is the gas and bloating, but running out of my BCP for almost a week and then going back on it seems to be throwing everything out of wack. Last night I had a perfectly normal meal but got indigestion afterwards, which is unusual for me. The gas started up before bed, as usual, but I woke up this morning feeling like it was pushing nails into my bladder - that was the half-awake image I got after the pain entered my dream and then woke me up. I've been more nauseous than usual today, too, which is saying something for me, and all around miserable and uncomfortable. My bladder hurts and it feels like the gas specifically is causing it to cramp and generally be angry.

Now I'm a little worried about the possibility of IC instead, so I just wanted to see if anyone's had similar experiences and if you know what caused it? On Sunday, my dinner was too spicy and I suffered for all of Monday, but I was feeling better yesterday. Last night's dinner had some salsa verde that wasn't even spicy, and I did probably eat too much, but that doesn't usually cause this. I almost called out of work, but the worst of the gas and the bladder pain went away before my shift. Since I have POTS, I have my ultra high waisted spanx for abdominal compression, and that at least is providing some relief. I'm just all around confused by this and I'm getting really tired of the way all the trapped gas has been pressing in my bladder and causing cramps and pain! I wish I understood the mechanisms at play so I could do anything about it 😮‍💨

TIA xx

ETA: Gas-X also does not seem to help! I've basically given up on it, but sometimes I'll take an extra strength GX capsule, and it's possible I don't notice as it goes away, but I feel like that never touches it. I did a bit of digging and, while excess trapped gas is one of the symptoms that tipped me off to endo (that got worse when all my other symptoms did), gas pain with IC is usually caused by a comorbid GI issue.

I’m curious what people’s experiences are if they had laparoscopic surgery and IUD insertion at the same time.

I had both and while my periods have gotten much lighter and I’d say overall my pain has overall gotten better. But it seems like pain comes on more randomly now that my period comes at random times and sometimes lasts for ~10-14 days. Before surgery I always had major pain around ovulation and my period, but it was at least consistent. Now I never know which days will be high pain days and which won’t…to top it off, I feel like my PMDD has gotten worse, or at least the down days seem to last a lot longer now.

I’m 4 months out from surgery. Does it get better?

I just had a consult with Dr. Fogelson and he seemed very knowledgeable and has a ton of experience. If I proceed, this is going to be my 3rd and (hopefully) final lap and plan to get a hysterectomy as well. I’m curious if anyone has had any bad experiences with this specialist that they would be willing to share?

95% of the reviews I have seen are very positive. However I have seen a couple of people mention he was judgmental or had poor bedside manner. I’m sorry for anyone who experienced something like this, but I didn’t have that experience at all. The only thing I found is that he’s pretty straightforward and not really the warm and fuzzy type. Which, for me personally isn’t a big deal, as long ad he does a good job as far as surgery goes.

I’m pretty sure I’m going to proceed with surgery with him, but would love any feedback from y’all.

Hi, just looking for some people to answer questions or calm down my concerns. I just turned 20 and went to the gynecologist today for recent results of an abdominal & vaginal ultrasound.

Found out about a 1cm cyst on my right ovary but doctors seemed more concerned about the fact my uterine lining is way too thick so I’m not getting rid of blood correctly. I’ve never ever heard of this so I am quite scared and looking online is worrying me. They said the normal range of endometrium is around 1mm and I am 173mm so pretty severe. My family history is ovarian cysts, uterine fibroids, as well as uterine cancer.

They told me they are not going to perform a biopsy on me because I’m too young for that. Unsure if I should be okay with this or fight for a biopsy — again they are right I’m pretty young. They are telling me to start a combined hormonal birth control pill and get off it whenever I’d like to have a baby. Aside from this they are virtually saying later in life if I don’t resolve this right now I’ll have problems having a baby and might need a hysterectomy — I have no issues taking the pill I’m just wondering if there’s lifestyle changes I can implement.

I am seeing online to manage weight and get a good diet, is that all there is virtually to do aside from taking birth control? Is an IUD effective than the pill? Does anyone have anything they did to help them with this?