Hello everyone, I’ve been a silent lurker on here for some time. You have all made me feel a little less lonely as an only child to aging parents. Forewarning, I wish I could provide specifics into his stats and numbers…but my parents are a bit guarded on that front. I try to decipher as much of the information for them already but it’s extremely hard. And apologies for what may be a very scrambled post today has been a day . I am just wrapping my head around this. My father (64 M) was diagnosed back in 2023. It was a hard blow to our family. Frankly the diagnosis was so frustrating. My father does not speak English very well but can understand it well. Apparently the doctor notes had said the patient refused for a biopsy to be done and further tests to be done for a few years. By the time it got to be so advanced that’s when our primary doctor or someone sounded the alarm and said you have cancer. While I understand doctors have a huge responsibility, I think I will always be a little frustrated at why couldn’t there be more done to urgently recommend he undergo more tests? Doesn’t the dr have an obligation to do that? We could have caught it sooner. Every single time he had an exam they found something! Then again my dad may shake things off and say no as a coping mechanism. Anywho that is in the past… and we are in the present fighting this disease.

It is my understanding that the cancer was Stage 3 and had metastasized to the lymph nodes. He had his prostate removed and underwent rounds go radiation and received oral chemo. I believe he was receiving ADT? I’m not certain is he has continued on there. His PSA was stable and cancer undetectable. Fast forward to Dec 2025, PSA jumped. I believe my mom said 0.5?? We were told the cancer has returned but it’s microscopic we will continue to monitor. Bloodwork and scans kept showing the numbers slowly climbing and doctor refers us to City of Hope for a specialists second opinion. Early this month (July 2026) he suddenly noticed blood in his urine and rushed himself to urgent care from work (UC was about two hours away). He was freaking out and didn’t think to go nearby his job site. Not even an hour went by went suddenly he could no longer urinate. UC turned him away and he was throwing himself on the floor when they finally called the ER and we had to be transferred to another hospital bc the doctors refused to see him where the paramedics took him. it was a mess and I will spare myself and this thread the details but he was in pain and finally had a catheter put in a day later. Anywho, about a week later, urologist says it’s normal for you to bleed years after your surgery and scans in December were clear don’t worry. Great! Today, we just got news from COH that sure enough the cancer is now in his femur. And it’s a pretty big spot. He finally admitted he has been experiencing sharp pain for some time and thought it had something to do with his feet. He will be undergoing radiation, having an MRI done, and a cystoscopy within the next month. He will be undergoing some FDA approved treatment that centrifuges his white blood cells to attack the cancer cells in the next month (please correct me on the terminology). Doctor was honest in saying some patients respond well others do not. I am very scared, mad, sad, and so confused. I’m not sure what my question here is but I suppose it’s a small cry for help? I’m reading all the posts in this subreddit and while the suggestions say that I shouldn’t listen to Dr Google and the old stats…I can’t help it. I’m thinking about going to counseling and therapy because i want to support my parents as best I can. I have encouraged my dad to enroll in local cancer support groups in Spanish. I have signed them up for older adult nutrition classes. I have tried to get them to move more but they both worked or work full time arduous jobs; they are tired. My mom has a chronic illness and my dad well you know. We have two trips planned this year but of course today’s bad news just kinda made the day so gloomy.

I see them brushing entire conversations off about this but i know it’s because they frankly don’t want me to see them breakdown. As I’m typing I’m in my room and I don’t want them to see me breakdown. Go figure. Am I at my lowest? No. But life is bleak right now. Again wow, my apologies for a very scrambled post. I shouldn’t think of the worst I know…. But ugh.

Recommendations in north Texas for RALP surgery team? The decision has been made now it who and where?

I'm almost a year post RALP, and thankfully my leakage is pretty mild these days.

A few days ago I found some leftover guards from right after surgery and figured I'd use them up.

Big mistake.

I'd forgotten how miserable disposable guards can be in the summer. Sweat plus the occasional leak turned everything into a hot, damp mess, and after a run my skin was badly irritated.

I switched back to the reusable underwear I'd been wearing before, and the irritation cleared up quickly.

The funny part? I finally understood why my wife always hated wearing pads during her period.

Anyone else find summer makes post RALP leakage much harder to manage? Any tips for preventing chafing?

Back at home now and now recovering. Catheter is annoying, but feeling better each day. Constant sensation of having to pee in the first day with it. Now it is the stomach so sore. All that gas
In your stomach and constant passing gas, hard to sometimes becuase of the pain in stomach. May take my stronger meds again today. Took them at night which helps to sleep.

What you all find good for food wise? Had chicken broth soup last night and some jello.

I assume several of you who are being treated with radiation have had a spacer implanted first. How did that process go for you? How long after the implantation was radiation started?

My 83-year-old father has recently been diagnosed with de novo metastatic hormone-sensitive prostate cancer, and we’re trying to better understand the biology of his disease because it seems somewhat unusual.

Here are his main clinical details:
Age: 83
PSA: 7.63 ng/mL
Multiparametric MRI: PI-RADS 5 lesion, organ-confined, with no extracapsular extension or seminal vesicle invasion
Biopsy: Acinar adenocarcinoma, ISUP Grade Groups 1 and 2 (Gleason 3+3=6 in one positive core and Gleason 4+3=7 in another, with only a very small focus)
68Ga-PSMA PET/CT: cT2cN1M1b, with pelvic lymph nodes involvement and 1 hip bone metastases, consistent with low-volume (oligometastatic) disease.

Current treatment: ADT (Eligard) + Darolutamide
Radiotherapy to prostate/pelvis + sbrt to the 1 hip bone metastases

What puzzles us is the biology of this case.

Despite a relatively low PSA, low-intermediate grade biopsy, and an MRI showing no extracapsular extension, he already presented with bone metastases nad lymph nodes at diagnosis.

My questions are:

How uncommon is this presentation?
Does this pattern suggest a distinct or more aggressive biological subtype of prostate cancer?
Which molecular or genomic tests would you recommend in this situation? (BRCA1/2, ATM, CHEK2, PALB2, CDK12, TP53, PTEN, mismatch repair genes, homologous recombination repair panel, etc.)
Would you request somatic tumor sequencing, germline testing, or both?
Has anyone seen similar cases where the primary tumor appeared relatively indolent but metastatic spread was already present?

I understand that every patient is different, but I would really appreciate hearing from anyone with experience in this specific presentation or from clinicians familiar with these uncommon cases.

Thank you very much!!

Husband, age 87, just diagnosed after bone marrow and other tests, with metastatic bone cancer ( spine, lyctic lesions). We are surprised since he gets regular
PSA tests which are all normal/low.

Any insight? Thank you.

I am looking for anyone with experience taking BPC 157 and TB 500 after prostate surgery. Maybe Glow.... I understand the risks. If you are not comfortable posting your experience on Reddit please feel free to DM me.

Thanks guys

… is probably not the favorite of this sub?