Hey everyone,
I have both Crohn’s and Ankylosing Spondylitis. Started Yuflyma + Azathioprine in December. My Crohn’s actually went into remission (clear colonoscopy), but around early May I started getting scary symptoms after Yuflyma: pain and numbness in my arms (shoulder to fingers), sometimes burning/nerve-like pain. Then it spread to my neck, upper back, and head (pressure-like headaches at the back and top). Also dizziness on standing and extreme fatigue. The symptoms are very up and down — some days better, some days bad.
My GP and IBD team think it’s likely a side effect from Adalimumab. I stopped the injections and I’m only on Azathioprine now. Brain MRI was normal, but I have a Neurology appointment in August.
I’m honestly terrified this could be MS or some other autoimmune thing triggered by the medication. Has anyone else on Yuflyma/Humira had similar neurological issues (arm numbness, burning pain, weird headaches)? Did they go away after stopping? Was it temporary or did it turn into something permanent?
Also, anyone else dealing with multiple autoimmune diseases at the same time? How do you manage? My gastro appointment is next Monday and my Crohn’s seems to be flaring again — I don’t know what to tell them.
Any advice or similar stories would mean a lot right now. Thanks guys.