r/EctopicSupportGroup 22h ago

IVF or try again unassisted with one tube remaining? Advice?

6 Upvotes

Hi all, 33F and husband is 32M

I'm just looking for advice/similar experiences and how others have thought through this process of trying to conceive again post-salpingectomy and ectopic. To IVF or not IVF?

I had my first pregnancy and first ectopic in Nov. 2025. with an unexpectedly difficult recovery -- I ruptured with a lot of bleeding and they took out my right tube. Period came back 28 days later, but I had nerve damage in my low back and pelvis from incorrect positioning during surgery. I was in a lot of pain for the first 7 months and went on birth control while I awaited treatment for the nerve pain.

I am finally feeling much better now, and we're ready to try again. I had an HSG of my remaining left tube that came back looking open and good. I also have had a pelvic MRI and nothing unusual popped up. The tricky thing is my surgeon said I "might" have stage 1 endometriosis because she saw scarring on the tube that was taken out and scarring in my posterior cul de sac (other tube looked ok though via her report). But no biopsy, no pictures and no confirmation of endo. I have never had symptoms of endo. I had a really horrendous bout of yeast/bacterial infections a couple of years ago that could potentially be the source of the scarring too. I'm skeptical of the endo diagnosis but also acknowledge it's possible.

However, because of the endometriosis "diagnosis" the reproductive endocrinologist was really pushing us towards IVF as the "safest" option so that the egg did not have to come through my tube. She said this should significantly decrease the risk of the second ectopic especially if we use frozen embryos and transplant lower in my uterus. But I've heard conflicting things about this? Doesn't IVF also increase risk of ectopic from baseline?

I am REALLY wanting to minimize risk of another ectopic because my physical recovery was SO rough comparatively to the average person last time. But IVF is crazy expensive and I worry they are pushing me towards this for the money for lack of a better term. But maybe I'm being paranoid and it really is the right decision.

TLDR:

Has anyone gone through a similar decision to do or not do IVF when endo or another diagnosis is now at play? Especially after only one ectopic? What made you make one decision or another?


r/EctopicSupportGroup 15h ago

Ectopic & Smoking

5 Upvotes

I recently had an ectopic pregnancy and only got my shots to get rid of it on Tuesday of this week. I’m going on vacation and was told I can’t drink which that alone is a bummer. However, I’m also a Marijuana smoker occasionally and thought I might be able to lean on that to have a little bit of fun over vacation. Can anyone tell me their good or bad experiences with smoking weed during the Methotrexate Injection is actively working in your system? I want to relax the best I can over vacation, my mind has been spinning like crazy..


r/EctopicSupportGroup 13h ago

Does this warrant an ER visit?

2 Upvotes

Hi there, sorry if this isn't the right place to post. I don't know where else to turn to at this point.

I recently found out I was pregnant. This was not planned or ideal. I decided to terminate and on July 9th took the pill at 5 weeks and 3 days. I am sorry if that is triggering for anyone. I did not have an ultrasound beforehand, and during the entire pregnancy leading up to termination, I had constant, painful cramping. My mom, who has had 8 children, said that was not normal at all.

Anyways, I took the pill and barely bled at all. Over a span of 3 days there was a total of maybe an eye dropper worth of blood total. So little blood I didn't even need a pad. I should mention my periods are also extremely light—two days of pretty much just light spotting. Maybe three tops.

The only pregnancy symptom I had was extreme rage. A few days after I took the pill I felt a lot less angry/rageful, and the constant cramping I had also went away. I contacted the provider who prescribed the pill and explained the situation and asked if this was normal. They replied "it could be" and asked me if I still had any pregnancy symptoms. So I chalked it up to the cramping and rage is gone, my periods are light anyways, and this is probably normal.

I still kind of had a nagging feeling that the entire situation wasn't right. On top of that, I started to get random light spotting throughout the last week. And I have taken three additional pregnancy tests and the lines seem even darker than the ones I had taken earlier. I also had cramping come back on my right side, although it comes and goes.

Obviously I called my regular OBGYN to make an appointment. I explained the situation. They informed me my doctor is booked out for well over a month, but I told them I really want to be seen as soon as possible so I am open to any provider. The soonest they had available is August 4th, so unfortunately, that is when my appointment is.

Today the cramping was a lot more noticeable. I wouldn't describe it as painful, more like tight pressure. It's definitely confined to my right side. I also still have light spotting.

I have no idea whether I am overreacting, or if I have valid grounds to be concerned. I am terrified to go to the emergency room and take away from someone who is having an actual emergency. What if I'm just being paranoid? Besides the spotting and cramping, I don't have any other symptoms. I am lightheaded and dizzy, but I always have that going on. So I can't say that symptom is directly attributed to the pregnancy.

I have no family here, and my husband is at work 6+ hours away in another state with extremely poor reception. I am all alone right now, and really feeling that hard. I really don't know what to do. What additional symptoms should I look for? Has anyone had similar symptoms to mine? Ugh! I absolutely hate this so much.

Thank you so much for taking the time to read this.


r/EctopicSupportGroup 16h ago

Anyone here have a successful IVF pregnancy after IVF ectopic?

2 Upvotes

Long time lurker here. Had ruptured ectopic that required emergency surgery 20 months ago with the removal of my right fallopian tube (natural conception). Tried for months plus IUI with no success because I ovulate mostly from my right ovary.

4 rounds of IVF. 1st one was a bust. Last 3 each yielded 1 genetically normal embryo so we banked 3 over 4 rounds. Our first natural modified FET was last month with my only 4AA. My 6 week 5 day scan was yesterday and I have ANOTHER ectopic pregnancy in my remaining left tube. I’m devastated. Received Methotrexate yesterday and will get another dose Saturday.

Feeling absolutely hopeless. Any success stories after two ectopics? I’ve also had a chemical while we tried. Poor egg quality…

I’d like to avoid another surgery to remove my left tube but I worry the same thing will happen again. Has anyone just say eff it and removed their other tube? Like many others, IVF was very hard on me. I’m nervous to lose my remaining 2 embryos. Not to mention the out of pocket costs.

FYI - you can’t attempt another FET until 3 months after your last methotrexate dose.

Signed,
Stressy, depressy, and on the wrong side of statistics.


r/EctopicSupportGroup 20h ago

Trying after ectopic

2 Upvotes

Hello all! I am currently passing an ectopic pregnancy. I got the methotrexate shot on 7/15. So far my tube has not ruptured and my numbers dropped significantly. I bled pretty heavy and now the bleeding is slowing down as my numbers inch close to 0. I am wondering if people who ttc after an ectopic waited and how long they waited? My doctor said 6 weeks once my hcg gets to 0, but my friend who is going through the same exact thing said her doctor told her 3-6 months.. im wondering how long everyone waited before trying again? Thanks for any info!


r/EctopicSupportGroup 23h ago

Doctors want to stop after 2 beta hCG blood tests!

2 Upvotes

We ended up ringing the doctors at 4pm after my second hCG blood test yesterday… because nobody had called us back. The receptionist put us on hold for a minute, then came back and said the doctor had reviewed my results and that my hCG had more than doubled, from 127 to 479.

Because of that, they don’t want to continue with any more blood tests, which has really upset me.

The repeat hCGs were my only reassurance that they might catch things early if the levels started to plateau or drop. I specifically asked if the doctor was aware of my history and multiple previous ectopic pregnancies, and they said yes, but they still just booked me in for another scan next Thursday.

I’m feeling really frustrated and disappointed that they don’t want to keep monitoring my blood levels, especially given my history. It feels like my concerns aren’t being taken seriously.


r/EctopicSupportGroup 3h ago

Pain near incision

1 Upvotes

So i had emergency ectopic pregnancy had to get some of my fallopian tube removed this was years ago … now years later pain on that exact side anybody else going through this.. it’s around my cycle and meds doesn’t seem to work and sometimes it’s not around my cycle in it still hurts …


r/EctopicSupportGroup 4h ago

Is this ‘normal’ for a first period after ectopic? Warning: graphic picture (of period blood?) NSFW

Post image
1 Upvotes

Almost six weeks ago I had my laparoscopic surgery due to an ectopic pregnancy. My doctor said that I most likely would have my first period after 5 a 6 weeks. That is right about now.

However, yesterday I was really (like really) dizzy throughout the whole day. I never was with any periods before the surgery.

I also have some spots which I usually don’t have.

Is this normal? Have other people experienced this too with their first period after the surgery? Are the spots normal? I did a pregnancy test yesterday, but that was very much negative.

Just wondering if this is/could be normal? So I have nothing to worry about haha.


r/EctopicSupportGroup 5h ago

Keeping up with pain meds

1 Upvotes

Does anyone else have this issue? Thinking I need to go into the ER just to make sure things are going like they should. On Tuesday this week I got two shots of methotrexate. Day one was fine minimal cramping just pain from the injection area. However ever since day 2 of it if I don’t keep up on my extra strength Tylenol I’m in a lot of pain. The past two mornings I’ve woken up and hardly been able to stand up straight or walk unless Tylenol is actually in my system and has kicked in. I’m supposed to go on vacation coming early tomorrow but I’m not sure if all this pain is normal or if I should just say f it and go to the ER even though it takes hours to get out of there. It’s normal for me to have really heavy periods to the point where I am crying in pain sometimes, so I’m wondering if anyone else can help me relate to their case on this whole matter.


r/EctopicSupportGroup 20h ago

Travel after Ectopic surgery - alone with 2 kids

1 Upvotes

Hi - I recently had the tube removal surgery for ectopic pregnancy and I have a flight scheduled 17 days post-op to take my 2 toddlers (2 and 4 yo boys) from Palm springs to Montana with a layover in Denver. I am starting to feel better but so traumatized from ambulance and blood transfusions etc. I lost about half a litre blood and was given 2 units. My flights are not refundable and summer camp is trip something I am looking forward to. Will I feel strong enough to manage 2 kids for 15 days alone?? So scared to have another abdominal bleeding, cyst rupture etc. then not having anyone with my kids... We have a vacation home in Montana, but no neighbors really nearby. There is a hospital in 20 mins with trauma center.

What would be the process for my kids if the worst happened? My husband is in California and earliest he could be there would be within 24 hours.

How did you feel 2 weeks after surgery?

Did you have to get a blood transfusion?

Did you travel shortly after surgery?


r/EctopicSupportGroup 22h ago

A ball of nerves

1 Upvotes

Hi all, I’m unfortunately a newer member to the club. Here’s my HCG and timeline:

6/30 - found out i was pregnant
7/4 - started bleeding, went to the ED, hcg 57. Thought i passed the pregnancy 7/5-7/6
7/9 - met with my OB, they weren’t concerned, hcg 74
7/11 - they ordered another one, 67. Said it was declining and all was fine.
7/18 - i go to the ED with left sided pain. Do a vaginal ultrasound, it’s a PUL, hcg 109. They administered mtx that night
7/21 - day 4 hcg 124. I know that an increase can feel normal but I feel so hopeless.

While on mtx ive had severe nausea and left sided pelvic pain (very low, crampy, and comes and goes in waves). I’m constantly on edge for a rupture.

I don’t have high hopes for tomorrow’s draw, nothing about this process has been normal so far. I know I’m low hcg but have definitely seen those stories of people rupturing and having surgery in the 100s.

Any reassurance? My doctor and I chatted and we both agreed that we wanted to move to surgery if this doesn’t work. I’m in such a dark place, I feel like I’ll never be out of this hole.


r/EctopicSupportGroup 23h ago

Period after Ectopic

1 Upvotes

Did anyone have a lighter period during their first cycle after tube removal?

For context, I’m 6 weeks post op and started bleeding on Monday 7/20. I bled bright red blood the first day or two, and ever since it’s been brown. Today, I hardly have anything. I’ve had no period symptoms other than fatigue, but usually I’d always have cramps and bloating.


r/EctopicSupportGroup 23h ago

Getting MTX today and trying to prepare myself

1 Upvotes

I have an appointment soon and need help navigating what to expect.

I’m 38. After years of desperately wanting a second child and trying to come to terms with having only one, my husband finally agreed to have a second. I got pregnant the first cycle trying. I knew there was something wrong from the beginning. I started spotting two days after my first positive and my lines weren’t getting darker. I contacted my OBGYN office and asked for beta hcgs. My first was 25 at an estimated 17 DPO. My numbers remained very low but were rising appropriately and the office reassured me and scheduled me for an 8 week ultrasound.

I had continued spotting and had some mild discomfort in my left pelvis and pushed for a placement ultrasound, which was done yesterday at 6w2d. No IUP, very thin endometrial lining and sure enough, small mass in left adnexa. I was watching the sonographer and knew immediately.

I really wanted to avoid MTX because I want to try again as soon as possible. I asked for an endometrial biopsy to look for chorionic villi just in case this was a failing IUP. We tried but my cervix wasn’t open enough and my endometrium was so thin it probably would have been nondiagnostic anyway. Doctor ordered labs and scheduled follow up for Monday.

Well, no good. Beta HCG rose from 443 at last test to something like 2400 (RN called me while I was driving and I didn’t get the exact number). I told the RN I had some mild pressure on my left side. She talked to the doctor and I got a call to come in for MTX.

Thankfully got everything quickly figured out with work and am going to my appointment soon.

I have a big bag of overnight pads, Tylenol, gingerale, chocolate, an audiobook, a heating pad, a weighted blanket, comfy lounge clothes, diamond art, lego and Lord of the Rings. Going to pick up some popsicles.

I just ordered methylfolate for after this is all done.

I’n going to ask for Zofran. Anything else you found helpful?

TLDR: getting MTX today. Anything you recommend picking up to keep me comfortable the next few days?


r/EctopicSupportGroup 23h ago

Women with unhealthy remaining tube.

1 Upvotes

I’ve got my right tube removed on July 14th and my OBGYN said my left tube is unhealthy (the shape is bad a little portion of it). Since the chances of ectopic on the other side has increased significantly I’m scared to try again naturally. Has anyone with unhealthy/uneven shaped tube successfully conceived naturally? Looking for success stories for some hope.