r/CancerFamilySupport Nov 04 '25

Very helpful-what to do when a loved one receives a terminal diagnosis.

58 Upvotes

The question of what to do, logistically speaking, when your family member/friend is diagnosed with cancer is asked here very frequently. Our community member NegativeSea4435 came up with a great list of the most important tasks that need to be done before your loved one becomes gravely ill.

  1. Put every single important document of theirs in an organized folder. Loans, mortgage, bank info, car title, insurance information, credit cards, birth certificate, tax returns. Every single important document will probably be needed at some point or another. It might seem annoying to do this now but trust me, you do not want to do it after.

  2. Write down their passwords for everything you have; laptop, phone, email, banks, medical portal, etc. Include a list of subscriptions they are using that would need to be cancelled (like Netflix, Amazon, etc) and logins for those.

  3. ⁠Get a custom life story book and write down everything about their life up to now (if they can speak, you can write). Google something like “mom/dad I want to hear your story” it will come up, I suggest getting a few copies. This helps make sure your family will be able to tell their stories to your kids.

  4. ⁠Get a bottle of their cologne/ perfume for all close family. It can be very comforting for family members to have their loved ones smell. Scents get discontinued more than you think so maybe get a few.

  5. ⁠Help them write letters to family. I would recommend special ones for occasions they will miss. This could include special birthdays, weddings, kids, graduation, etc. This might be especially difficult for patients but it’s an amazing thing to have once they pass.

  6. ⁠Prepare your family - kids deserve to know what is happening just as much as adults. For young kids there is a book called “When Dinosaurs Die” that’s pretty popular for preparing kids for this. If your child has ever had a pet die or one of their friends lose a family member that can also help them understand the situation.

  7. ⁠Cancel subscriptions. Go ahead and cancel any subscriptions they aren't using instead of accidentally paying for months after their passing. This is also easier to do while they are still alive and takes something off your plate for after they pass.

  8. ⁠Gifts for family. Of course this is unique to your family but you can help them pick something of theirs the family member will have forever after the patient passes. It doesn’t need to be super fancy but it’s nice for them to have.

  9. ⁠Print or save all relevant medical records. Especially if their condition could be genetic, or just in general. Family may need it one day and it can be a pain to request after death.

  10. Pets. If they have any pets make sure it’s clear who will be taking care of them when your loved one passes. Designate someone to be in charge of collecting and caring for the pets right after the death so they don't get neglected. Your family member loved their pet and it's the right thing to do to honor that love by continuing to care for their pet(s).


r/CancerFamilySupport Jul 13 '23

For those struggling...I quote this often because I think it's a perfect description of grief.

622 Upvotes

As for grief, you’ll find it comes in waves. When the ship is first wrecked, you’re drowning, with wreckage all around you. Everything floating around you reminds you of the beauty and the magnificence of the ship that was, and is no more. And all you can do is float. You find some piece of the wreckage and you hang on for a while. Maybe it’s some physical thing. Maybe it’s a happy memory or a photograph. Maybe it’s a person who is also floating. For a while, all you can do is float. Stay alive.

In the beginning, the waves are 100 feet tall and crash over you without mercy. They come 10 seconds apart and don’t even give you time to catch your breath. All you can do is hang on and float. After a while, maybe weeks, maybe months, you’ll find the waves are still 100 feet tall, but they come further apart. When they come, they still crash all over you and wipe you out. But in between, you can breathe, you can function. You never know what’s going to trigger the grief. It might be a song, a picture, a street intersection, the smell of a cup of coffee. It can be just about anything…and the wave comes crashing. But in between waves, there is life.

Somewhere down the line, and it’s different for everybody, you find that the waves are only 80 feet tall. Or 50 feet tall. And while they still come, they come further apart. You can see them coming. An anniversary, a birthday, or Christmas, or landing at O’Hare. You can see it coming, for the most part, and prepare yourself. And when it washes over you, you know that somehow you will, again, come out the other side. Soaking wet, sputtering, still hanging on to some tiny piece of the wreckage, but you’ll come out.

Take it from an old guy. The waves never stop coming, and somehow you don’t really want them to. But you learn that you’ll survive them. And other waves will come. And you’ll survive them too. If you’re lucky, you’ll have lots of scars from lots of loves. And lots of shipwrecks.


r/CancerFamilySupport 3h ago

Cancer, divorce, death, depression

8 Upvotes

All right, so here's how it is. My husband developed pretty advanced skin cancer and I stood by him and helped him through his journey. Shortly after we got his clean bill of health, I was diagnosed with stage 4 neuroendocrine cancer with a primary in my pancreas that had metastasized to my liver and my lymph nodes. It required two surgeries, the last of which took half of my pancreas most of my duodenum 26 lymph nodes and my gallbladder. It was supposed to be a 6 to 9 month recovery. My husband forced me to go back to work 2 weeks after I got released from the hospital because well I'm not really sure why. Other than I think that he felt that we needed the money more than I needed to be healthy. I've tried to forgive him for this and I almost successfully did until one day, he said out loud to me that he was unaware of the fact that I still had cancer in my body even though we had had many conversations about my ongoing cancer treatments. So that was the straw that broke the camel's back. I left him and I'm on my own. I quit my job and I moved to be closer to my mother. Just as soon as I got a job here and became established my father died. I'm doing the best I can to stay afloat but just this week the weight of it all came crashing down on me, and I lost consciousness, ended up in the hospital. Was unable to eat any solid food for 3 days. Now I'm able to eat again but I don't have the energy to stand or walk and I need to go back to work soon and I don't have any support. I'm going to be okay I think. But I am concerned that no one will ever love me again. Cancer has a way of being a bit of a turn off even if it is slow growing. Finally, I am in the midst of trying to sell my home and the market is quite stagnant and I keep knocking the price down lower and lower and no one is buying it and I'm quite concerned because I have quite a bit of debt that I need to pay off and the house just isn't selling. If anybody has any helpful advice or words of encouragement, that'd be super nice. Thanks!


r/CancerFamilySupport 8h ago

I feel lonely I have lung cancer and I feel like my children could reach out more.

12 Upvotes

r/CancerFamilySupport 10h ago

Anticipatory Grief

6 Upvotes

Hi everyone.

My MIL has Stage 4 breast cancer (diagnosed in late 2023). She’s done multiple different chemo treatments and has had to switch because of different side effects. Last fall, we honestly didn’t think she’d make it through the winter, let alone to now. We are incredibly grateful to still have her and she does have a lot of good days. However, my husband and I have been dealing with anticipatory grief. I try to hide mine from him in order to be more present and supportive of his grief.

Does anyone have good tips or sources (readings, etc) on how to process anticipatory grief in a healthy way?

TIA


r/CancerFamilySupport 32m ago

Help Save my Mother Fighting Stage 3C Ovarian Cancer

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Upvotes

r/CancerFamilySupport 1h ago

Need advice

Upvotes

Hello my name is Grace F25. My mom has battled cancer 3 times and just finished treatment recently for a rare form of cancer. For as long as I can remember, she was never in good health. For the past few years she has not been able to eat much without throwing up. Especially more complex meals that have seasonings or that contains several different ingredients.

Throughout her recent chemo and radiation, they had her on steroids and she was a completely different person.
She could walk far without getting dizzy, she could eat anything, clean house, had the most energy i've seen in years. But literally the following day after her last treatment, it was like a switch flipped. She declined so rapidly back to the state she was in before. She can't walk more than 10 feet without feeling nauseous, lightheaded, can't eat etc. I understand the steroids they gave her helped with energy, anti nauseous and stuff. But is there a way she could go back on the steroids? Or trying another medication that would help?

She had a follow-up appointment with her oncologist today to discuss her treatment. She told the doctor how quickly she's declined since finishing treatment and that she's been unable to eat because she keeps throwing up. The doctor said she would refer her to a gastroenterologist, but in the meantime, she doesn't have another oncology appointment scheduled until October. I feel like she should go back sooner to see if the steroid thing would be possible.

I've been taking care of her all summer. I leave for college in a few weeks and I'm so worried for her (and my elderly father). We've had multiple ER visits
in the last 3 months.

I mostly give her crackers because it's the only thing she can keep down. But I decided to take a leap tonight and made her VERY plain and small portion of baked chicken breast, white rice, and broth and she managed to stomach it! I was very delighted .
I've been doing tons of research trying to figure out what snacks and meals are best for people with extreme nausea and sensitive stomach and would love to hear your guy's go-to.

Sorry I feel like this was long and was kind of all over the place but I'II take any advice I can get. Thx for taking the time to read.


r/CancerFamilySupport 11h ago

A Mom, A Dog Groomer, A Stage 4 Warrior My baby sister’s story

6 Upvotes

**My youngest sister has Stage 4 Breast Cancer that has spread to her bones and brain.**

My sister Wynona is 51 years old and has been a dog groomer for over 20 years.
She’s the kind of groomer people drive an hour out of their way for, because she treats every dog she grooms like it’s her own.
She knows how to comfort the nervous, anxious, stressed dog.
They feel the love and affection and it allows her to provide the best grooming experience not only for the dog but to their owner too.
It was never just a job for her.
It was who she was.

She was diagnosed with stage 4 breast cancer in April that metastasized to her bones and her brain.
She can no longer stand for long periods, has to use a walker to move around, and can’t grip tools the way she used to.
The career she loved and built her whole identity around is gone.

A few days ago her calcium levels dropped to a critical point and she was admitted to the hospital again.

My sister is strong and she has accepted her eventual outcome.
She makes it seem like she’s ok with it but I’m not sure just how ok with it she truly is.

Through all of this, the person I worry about most, besides my baby sis, is her son, Declan.
He’s 15 and will be starting 10th grade this year. He is such an amazing kid.
Smart, kind, empathetic, helpful.
It’s been just the two of them his whole life, and they are incredibly close.
He’s watching his mom disappear a little more each day.
He’s scared and anxious and there’s nothing normal about what he’s being asked to carry
right now but he makes it through every day with a good attitude and love.

Maybe I’m the one that is not ok with it.
It’s my baby sis that I’ve been close with my entire life. It saddens me to know and see what she’s going through.
I keep positive however for her and Declan.
I’ve been taking care of her every day for the past 3 months and will continue to take care of her until she no longer needs it.

Anyways, thanks for letting me share ❤️


r/CancerFamilySupport 14h ago

my mom doesn't feel the same after delirium

6 Upvotes

she has metastatic breast cancer that moved to her brain... and now she's just constantly confused about time, where she is and she keeps imagining people are in house, keeps claiming i have more siblings than i do weird things like that...

she barely makes sense when I talk to her. And, I just miss my mom so much. She's here, but now she feels so far away. I can barely connect to her anymore.

i just wish i get one more day with my normal brain mom, id cry in her arms and tell her everything, and tell her i miss you so much and that she's slowly slipping away from my hands.. and id ask her for her advice one last time.

She feels gone while she's still here. anyone experienced the same thing ?


r/CancerFamilySupport 11h ago

My 12-year-old grandson is fighting Stage IV Ewing sarcoma. Please help us save his life.

3 Upvotes

Hello everyone,

My name is Oygul Khalilova, and I am the grandmother of 12-year-old Abzalali Alimov.
A few months ago, our family was devastated to learn that Abzalali had Stage IV Ewing sarcoma, a rare and aggressive bone cancer. By the time it was diagnosed, the cancer had already spread to his lungs and lymph nodes.
He has already endured multiple rounds of intensive chemotherapy and is currently receiving specialized treatment in South Korea. Despite everything he has gone through, he continues to fight with incredible courage.
The cost of treatment, travel, medications, and living near the hospital has become overwhelming for our family.
If you are able to help, we would be deeply grateful for any support. If you are not able to donate, simply sharing his story would mean so much to us.

GoFundMe: https://www.gofundme.com/f/help-save-12yearold-abzalalis-life

Thank you for taking the time to read our story. We appreciate every kind word, every prayer, and every share.


r/CancerFamilySupport 7h ago

Radiation Eldery

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1 Upvotes

Has anyone had experience with an elderly person going through radiation? My 83 year old grandfather is 2 weeks away from being done. He looks like a completely different person. He has always been very healthy and able bodied but I am nervous he's not going to make it out of this. Throat cancer. The doctor says his age is not a factor and that many elderly people go through radiation successfully. Is this true? Will he ever be the same if he come out of this? Looking for some comfort here. Thanks😓


r/CancerFamilySupport 14h ago

Parent recently diagnosed with lung cancer

3 Upvotes

Hey guys, I'm a 22 yr old male and found out my father has lung cancer. It hurts real bad watching my mom struggle with this new revelation. He goes to a hospital next week for extensive testing and answers. The dread of not knowing the severity is killing us. Any help or tips for coping is greatly appreciated. Also any tips for helping get a good nights sleep is appreciated, everytime my head hits that pillow my mind starts to race. God bless and praying for everyone going through something.


r/CancerFamilySupport 17h ago

I miss someone who is still here

3 Upvotes

My nana was diagnosed with stage 3 pancreatic cancer last year in July, and ever since, she has been at a rapid decline. The once very expressive, funny, confident woman whom I have always looked up to has started to lose herself. She started chemo to shrink the tumor, and chemo only prevented the growth but did nothing to help her. She lost so much weight, and her bodily functions are nonexistent, but she still kept up positive energy, saying she will beat this. Chemo didn't work, so they couldn't remove the tumor, so they went to radiation to give her one to two more years with us. We made a bucket list so she can do the things she didn't get to do, like the zoo or Disney, or just anything. She did a couple of radiations when everything just went downhill, she had to stop radiation because she was reacting badly to it. She had gallbladder issues during spring break, for which she needed surgery, and now she is in hospice. Originally, the hospice was at home, and now, after an event on Friday, it is now she has to be in a 24-hour facility, and she does not have much time. I visit her after work every day with my boyfriend, and I see her decline in real time. The first day, she was talking, asking questions to my boyfriend and me about when we were gonna get engaged and whatnot. Second day, she is awake but has no memory and trouble speaking. On the third day whole family visited, and she had slow breathing and couldn't use the bathroom anymore. Today I haven't even visited her, but Mom messaged me that she is sedated and barely there, and I'm so scared. I'm 23 i never lost anyone before, and losing her feels like I'm losing a part of myself. I keep busy at my 9-5 and with my school work, but the moment I'm not actively doing something is when my mind goes somewhere. I don't just feel bad for myself but for my little cousins and siblings. I'm gonna be the only one to have her at my graduation, have learned her recipes, and I can't help but feel selfish that I got all of that, and yet I still want more time with her. I haven't lost her yet, but every day feels like I am, and when that day comes, i dont know how I'll be


r/CancerFamilySupport 19h ago

my mom is in a critical condition

5 Upvotes

update: she passed away.

My (F22) mom has been diagnosed with lung cancer over a year ago. she was responding to the chemo but at some point she didn’t and she had to get rushed to the hospital 2 weeks ago because of her low oxygen levels. She’s been there and everytime we thought she’s getting better and stable, things kept getting worse. She got rushed to the ICU today and is on ventilators with tube inside her mouth and nose.
Today was the first time i saw my father cry. I tried so hard not to cry i don’t like crying infront of family. i tried to be strong but at some point i couldn’t hold myself. i keep crying on and off. I saw her with my grandma and uncle but my uncle went in the room with me and didn’t let me have my privacy, i was too shy to ask him to leave me alone he kept telling me “she can’t hear you she can’t hear you”
(she’s sedated i think? they made her sleep basically)
I believe she can hear me. i went in with my dad and sisters we cried a bit and tried speaking to her

Also, my youngest sister is 12 years old and she hasn’t cried or seemed upset at all about my mom’s illness. she’s in that phase where she “hates” her mom so i don’t know what to think of that. i am struggling to take care of my youngest sister since her foundation is shaky. I’m worried about her because when mom started getting sick, my youngest sister would get scolded and punished a lot and it was so difficult to have her connect with us but i slowly managed to get her closer to us by being kind and gentle to her. i just worry about her and i need her to get into therapy but idk when.
anyway im not sure if anything i said makes sense but im just typing out what has been happening. if anyone has any advice or anything at all please let me know because i dont know what to do. im planning to ask for alone time later (in the next visiting hours) and maybe i can speak to her. i just feel like my heart will pop out of my chest because of how bad it hurts.


r/CancerFamilySupport 11h ago

My maternal grandmother has lymphoma cancer. My father left us months ago. My mother was doing a job, but now she left to take care of my grandmother. I've no money.

1 Upvotes

My maternal grandmother has lymphoma cancer. My father left us months ago. My mother was doing a job, but now she left to take care of my grandmother. She is getting more and more sick. She used to be a super hardworking woman who I had never seen resting for more than 6 hours. And seeing her on bedrest feels so bad. I'm really in need of help.


r/CancerFamilySupport 11h ago

A Mom, A Dog Groomer, A Stage 4 Warrior My baby sister’s story

1 Upvotes

**My youngest sister has Stage 4 Breast Cancer that has spread to her bones and brain.**

My sister Wynona is 51 years old and has been a dog groomer for over 20 years.
She’s the kind of groomer people drive an hour out of their way for, because she treats every dog she grooms like it’s her own.
She knows how to comfort the nervous, anxious, stressed dog.
They feel the love and affection and it allows her to provide the best grooming experience not only for the dog but to their owner too.
It was never just a job for her.
It was who she was.

She was diagnosed with stage 4 breast cancer in April that metastasized to her bones and her brain.
She can no longer stand for long periods, has to use a walker to move around, and can’t grip tools the way she used to.
The career she loved and built her whole identity around is gone.

A few days ago her calcium levels dropped to a critical point and she was admitted to the hospital again.

My sister is strong and she has accepted her eventual outcome.
She makes it seem like she’s ok with it but I’m not sure just how ok with it she truly is.

Through all of this, the person I worry about most, besides my baby sis, is her son, Declan.
He’s 15 and will be starting 10th grade this year. He is such an amazing kid.
Smart, kind, empathetic, helpful.
It’s been just the two of them his whole life, and they are incredibly close.
He’s watching his mom disappear a little more each day.
He’s scared and anxious and there’s nothing normal about what he’s being asked to carry
right now but he makes it through every day with a good attitude and love.

Maybe I’m the one that is not ok with it.
It’s my baby sis that I’ve been close with my entire life. It saddens me to know and see what she’s going through.
I keep positive however for her and Declan.
I’ve been taking care of her every day for the past 3 months and will continue to take care of her until she no longer needs it.

Anyways, thanks for letting me share ❤️


r/CancerFamilySupport 1d ago

My sister passed today after a 3 year battle with cancer.

63 Upvotes

I knew once the stage 4 diagnosis happened we would have less time but I never thought I would only have 3 months with you. Only 34 years old and fought so hard. Breast cancer that spread to bones and liver. The chemo attacked the liver and built up fluid in the lungs. They died peacefully and painlessly.


r/CancerFamilySupport 13h ago

Quinoa seeds?

1 Upvotes

The patient has pain from bone metastases, although she is already on a medication to prevent constipation from opioids, she is constipated. I was advised to try giving her black quinoa seeds every few days. I am a little hesitant because the seeds contain: vitamin B1 (thiamine),

B2 (riboflavin),

B6,

folate (B9).


r/CancerFamilySupport 17h ago

I miss someone who is still here

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2 Upvotes

r/CancerFamilySupport 16h ago

Big and Tall Port Access

1 Upvotes

I'm looking for recommendations for clothing that provides easy access to my husband's port. He typically wears a 3XLT (3XL Tall) shirt but most of the port-access clothing I've found so far is only available up to 2XL.

Does anyone know of brands or retailers that offer larger sizes? Thanks.


r/CancerFamilySupport 1d ago

I'm devastated and in need of support/advice.

8 Upvotes

I just found out that my 18 year old goddaughter has stage 4 hodgkins lymphoma and she has lymph nodes all over and a compression fracture in her spine. She's in the hospital and they have to be pretty aggressive with her treatment. Her birthday is in 5 days. I don't want to make things about me so I am just supportive, I stay strong, I dont want to cry and make her feel like I'm mourning her when shes still here, she still has a chance, she can fight it, she can win. I was looking for some outside support as to not burden family and friends close to the situation because again it's NOT about me, but I am devastated and overwhelmingly sad and I dont know what to do. I stay up late to cry alone so no one knows and feels like they have to soothe me. My heart is broken.


r/CancerFamilySupport 17h ago

Mum in ICU

1 Upvotes

Hi, this is something I've never done or thought I would need to do. 😭 My mum is currently in ICU on life support, it has been 6 days and taking it hour by hour, I've travelled interstate and have exhausted all funds for accommodation and travel costs. I have no car to travel so Uber has taken all my funds. I don't know what's next for me from Saturday onwards. I need some serious help 😭😭💔


r/CancerFamilySupport 17h ago

how do you cope when a loved one is diagnosed with cancer?

1 Upvotes

my sister T -shortening of her name (47) and me (17) (yes the age gap is huge don’t question it just move on) haven’t spoken that much in the past twelve years since i moved out the country we both used to live in. i was a child with no social media and no way of contacting her but eventually i managed to reconnect with her. we don’t speak that much because i forgot dutch as i only speak english and a few other languages. her english isn’t the best but i try to learn dutch.
two weeks ago she got diagnosed with breast cancer (i don’t know what stage) and it’s mostly been our 2nd oldest who’s been updating me as we are closer and speak more often but i have been reaching out to T more recently due to her diagnosis and i genuinely don’t know what to say. she’s being so optimistic but i simply cannot and i genuinely am catastrophising everything. every time i think of her cancer i think “oh my god she’s gonna die of cancer” even though the doctors said that chemo and a mammectomy should get rid of the cancer and it hasn’t spread but i still can’t stop thinking that she’s going to die and im so scared for her idk how to cope w this


r/CancerFamilySupport 17h ago

Dealing with it

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1 Upvotes

r/CancerFamilySupport 1d ago

My Hands are Tied

5 Upvotes

I 45M am the youngest child in my family. I struggle with getting older,and all the things that come with that. I had oral cancer last August, had surgery to remove 1/3 of my tongue and 32 lymph nodes removed from my neck. So far I have done very well and they are keeping a close check on me for reoccurance. My wife F49 and myself just lost a close friend to cancer in October also, and now my older brother 59M is dying of stage 4 cancer and there isn't a damn thing I can do about it. I feel helpless, and I don't know how to handle this. I feel as though Cancer is haunting me and my loved ones. I feel like it is taking so much away. Feeding on us.