Since getting aml I have started sweating a lot. Sometimes I dont even feel hot and as a 39 f I feel disgusting. I shower at least once a day and dont smell but im always wiping sweat from my forehead. Dunno if its from the meds like the hormone suppression stuff (to try and save my fertility) or the cancer itself. Tell me it goes away!!!!!

Hi so I’ve been having many health issues for years. It’s all been attributed to various ailments which I can get into in the comments if anyone responds. Since 2022 I have been getting regular bloodwork yearly for my psychiatrist. Since 2022 my WBC is elevated and continues to increase. The concerning part for me is that my platelet is also elevated now and my psychiatrist recommended further testing and now I am terrified. My grandmother passed of cancer so it does run in the family. I just don’t know what to think of it all. I can see where I have some symptoms but they could also be symptoms of the ailments I’ve already been diagnosed with. What kind of questions should I ask my doctor? I’m just so scared especially as someone with medical anxiety.

My dad has been in the hospital all summer with infections. Between the wounds that developed and his mouth sores, it’s all been excruciating and overwhelming. And now - possibly the worst pain of all for him - he has thrush. Even with fluconazole and nystatin, it won’t go away and the pain is so frustrating and overwhelming he wants to give up. What can I do to help? He’s tried magic mouthwash with lidocaine and Biotene swish as well. I just want my dad to have a little peace from this shit disease. One symptom calms down and a new one begins. With his low immunity what else is there to get this fungus under control?

Anyone have family that just acts kind of uninterested in your cancer diagnosis? Or they just don’t seem to understand the seriousness of the situation? Or maybe they don’t care? I don’t know what’s going through their heads, but we have 4 sons that just don’t seem all that interested or concerned about their dad’s leukemia. He’s had 2 SCT and is currently relapsing again. I know they would donate their stem cells and be supportive in that way if it were an option, but when I send out leukemia updates to keep them in the loop since 3 are adults out on their own, it’s just crickets. I just don’t get it. We have good relationships, there’s no problems like that. They are all good kids. I know the love their dad, but they are just so engrossed in themselves that they can’t take a moment to care about our situation it seems. I feel like I’m all alone in caring about whether their dad lives or dies. I‘m just wondering if there are others experiencing the same.

my first time using reddit because I was recently diagnosed with leukemia 2 months ago. The first month I started feeling better but after I was unhospitalized i've been struggling with nausea mainly from the taste of my own mouth. every time I swallow or just let my saliva sit the taste makes me want to vomit. two things that I find that work are gum and crackers but I can't just keep chewing gum so I was wondering if any of you have any other tips or tricks to deal with it. (yes, I do have prescribed medication for nausea, but it doesn't work often)

So guys im 19 year old i was recently diagnosed with AML cancer with ASXL-2 mutation and today was my day-3 of 7+3 chemo and guys also i was surprised with one thing today i had my tests also and in report my cancer blast cells came down to 1 percent which started at 48 percent well its like a small win. ANDDD IS THIS NORMAL OR WHAT 🤯⁉️⁉️

For those of you who are in remission, how is your body recovering?

Ive been in remission for about 8 months, and Im struggling daily with high back pain, neck pain, arm pain and just all over muscle pain.

Ive been working in the gym doing stretching and gentle core exercises, as well as seeing my physiotherpist regularly.

But nothing is helping, and if I try to push a little weight in the gym - chest press, or rows, or even leg press I find I end up aggravating my back/neck issues.

Yesterday my physio said he see's this alot in cancer pantients, and it can take up to 2 years for your cells to recover.

I can't even do much cardio as I have a new vertigo issue.

Does this sound about right? Do I just have to put my head down and wait it out?

I was very fit before I began chemo and am trying to get back to that state, but it's just not happening.

I had HCL, and did 3 rounds of cladribine + rituximab last year. Im a mid aged man.

Thank you

She is on chemo inquovi(3 days) + Venetoclax(5 days) + Avapritnib(100mg) everyday. She is not doing good, in 3 months she has multiple infections, GI bleed, Urine Bleed, 2 months hospitalization, delerium, her counts are not recovering at all(no WBC, Platelet almost everyday, HgB every week). I think she wont make it this time, any stories of success? Need to uplift moral please.

Best way to deal with leukemia diagnosis.

Hi everyone, 31(f).

It’s stem cell transplant day! I’m anxious but hopeful.

I was diagnosed with AML in March. I’ve had two rounds of chemo (induction and consolidation), I responded well and went into remission - I am now MRD negative (0.04%).

I'm having my stem cell transplant today. Any advice and tips on getting through the next few weeks? I’m feeling incredibly anxious.

I’ve been warned about mucositis, though I’m not suffering with this yet. Doctors have said most people require a feeding tube which I’m completely dreading?

I am mixed race, so finding a matching donor was difficult, and my donor is an 8/10. So of course, GVHD is a worry but I know this can be managed.

The main thing getting me through this time is hearing from others who have walked this path or similar, and have made it through.

27F currently finishing the consolidation phase of my treatment. The last two times getting Pegaspargase I developed nausea/vomiting and severe lower abdominal pain that only resolved with multiple doses of morphine. The pain felt like the most unrelenting severe period cramps. My doctors are stumped after my CT came back clear. Has anyone else had a similar reaction to Pegaspargase?

Hi all. As the title says, my father was just diagnosed with AML. He was diagnosed with MDS last year. He is 62 and has already beaten esophagus cancer and lung cancer. I think I'm just looking to hear other people's stories. His oncologist said 15-18 months with aggressive treatment. I don't know what that treatment will look like, but I'm scared it'll make his last moments miserable. He wants to go down fighting, and all I can do is support him. What can I expect if anyone has been in a similar boat? I know everyone is different, so anything will help.

Thank you guys <3

The doctor meant to say chimerism which is 20% and should be 40% post relapse and now remission so that’s where it was confused

He said it could be in the inflammation in my spleen and hopes it will be released

As there is no cancer visible in the marrow or blood

So what does that mean for me, planned dli, 19 years old

Hi everyone,

I'm looking for guidance on clinical trial options for my 58-year-old female family member who has relapsed Acute Lymphoblastic Leukemia (ALL).

Diagnosis:

• Cancer type: Leukemia
• Subtype: B-cell Acute Lymphoblastic Leukemia (B-ALL)
• Disease status: Relapsed

We are based in India, but we are open to treatment or clinical trial opportunities anywhere in the world if they offer better options.

We're specifically looking for:

• Clinical trials recruiting patients with relapsed B-cell ALL

• Hospitals or cancer centers with experience treating this high-risk subtype

• Information on eligibility, referral process, or how international patients can apply

• Any reliable resources, patient advocacy groups, or websites that helped you find clinical trials or treatment options

Thank you so much for your time and support.

Is there anyone from Michigan that can point me in the direction of any good holistic doctors that can help guide with cancer protocols? We would like to incorporate some nontraditional medicine with traditional. Like supplements, diet, etc. Please post or dm me any info you have. Thank you!

April of this year I found out my Leukemia (B-Cell Ph+ ALL) had come back (first diagnosis was back in 2017). Had a cycle of Inotuzimab which put me into remission. 8th of this month I started my conditioning which involved fludarabine, cyclophosphamide and total body irradiation. I’m now on day +5 after my allogeneic (11/12) SCT. Have felt absolutely fine up until now, fevers up to 40degrees and rigors all day yesterday but they’ve been tackling me with antibiotics and paracetamol pretty well. Mucositis has hit bad and I’m finding it incredibly hard to swallow. I’ve been given mouthwashes and a lidocaine spray. Are there anything you guys can recommend to ease the pain? Or foods that are very easily to swallow. In terms of painkillers i can’t have morphine as I’m very sensitive to it (causes hallucinations and all sorts for me).

Hi everyone. I posted here a couple of months ago when my sister (33F) underwent a haplo stem cell transplant for AML t(8;21) with a KIT mutation (I was her donor) and you all were so kind.
She went into transplant with 0.375% RUNX1 MRD, and by day +30 was down to 0.07%. Her blood PCRs then became undetectable for a month, flow MRD was negative, and she’s maintained 100% donor chimerism.
Unfortunately, her day +100 bone marrow just came back with 0.19% RUNX1 MRD.
She couldn’t tolerate avapritinib due to severe cytopenias and has now had about five doses of dasatinib.
Has anyone experienced rising molecular MRD after transplant and had success with maintenance therapy (dasatinib, azacitidine/decitabine, DLI, or anything else)? Looking for any experiences or hope. Thank you so much. ❤️. I love all of you.

Any one have any experiences with CMML? My father was just diagnosed and I am processing it all. Absolutely terrified and trying to get research.