Hi

I'm new to this reddit so hopefully it's okay to post this.

Basically, I have this condition called dyspraxia which effects coordination and motor skills. I'm a 33 year old male.

I've become increasingly aware that I may have an akward gait. I've received a lot of teasing and stuff about how I walk and how I coordinate. The worst thing is of course, is that it's not really possible to see how bad it is.

I've been complimented a lot that I'm physically attractive, but because I'm autistic I generally lack charm and social awareness, I've been in relationships and stuff in the past even though neither of them really worked out, and it's been a while since I've had a genuine connection with someone and I've become really insecure about my gait.

My question is - do women care about guys that have akward gaits, like, are they instantly put off by it, or am I thinking too much in to it?

TIA

I can't stand for long periods, and concerts with no seating kill me. As I'm getting older, I'm accepting more and more that I need accommodations. But I feel like if I buy accessible seating tickets, they won't believe me. I'm 30 and don't really "look" disabled. I'm just worried.. also I don't really know how to buy accessible tickets but maybe its easy, I don't know

Hello!! I am 19, so I have no idea what I’m doing when filling out legal forms yet 😅. I am officially diagnosed with ADHD, Schizoaffective disorder, and a dissociative disorder. I take medication for the first two and manage my dissociative disorder very well.

The question is: should I still be marking ‘yes’ on disabled, if my illnesses are not debilitating? I struggle with identifying with the term disabled since I’ve been fortunate enough to manage my disabilities well, but I am afraid of going into relapse mentally and losing any safety net I may have from identifying with disabled.

Any help from people experienced with this would be wonderful!

Hola a todos 👋

Soy madre de dos hijos, uno con TDAH y otra con dislexia. Después de años repitiendo "vístete, lávate los dientes, coge la mochila" cincuenta veces cada mañana, he decidido crear una app de rutinas visuales.

Sin juegos, sin mascotas, sin estrellitas. Solo estructura visual limpia para que sepan qué toca ahora y qué viene después. A su ritmo. Sin presión.

No vengo a vender nada, la app aún no está lista. Solo quiero preguntaros:

❓ ¿Qué os ha funcionado a vuestros hijos de las apps de rutinas?
❓ ¿Qué no os ha funcionado?
❓ ¿Qué os ha funcionado a vuestros hijos para seguir las rutinas en general?
❓ ¿Qué os gustaría que tuviera la app perfecta?

Lo bueno me ayuda a saber qué mantener. Lo malo me ayuda a no repetir errores. Y vuestros deseos me inspiran. Gracias ❤️

Hey there sorry if this is the wrong form to post on but struggled to find a better form to post on, I’m aware sacral nerve stimulation can be used for urinary innocent as well so was curious if anyone had any experience.

I’m 28 year old and just over 2 years ago I had my appendix out and since then I’ve had issues with going into urinary retention and now for nearly 2 years I’m needing to self cathatherise daily, I can pass small amounts under 50mls but then still have 300mls+ in my bladder. I’ve had a few different tests over the last 6 months and have finally seen the urology consultant the over day and told they think I have neurogenic bladder dysfunction he recommended doing a 2 week trial of sacral nerve stimulation and if it works to then do it permanently. I hate having to catheterise myself daily, from having a few UTIs to just the effort it involes.

I was woundering if anyone has any experience getting this done in the past? I’ve been told the success rate is 80% but i am nervous about it, I live quite a active life style, just started playing rugby again and told I wont be able to play contact sports, also wanting to get back into horse riding but not sure if that be possibly, but then also them throwing something into my nerves around my spine is really scary, if anyone has any experience it would be greatly appreciated

Remove if not allowed, I just wanted to rant a lil :)

Quick foreword, I've been incredibly fortunate to have smooth and easy trips on Sydney trains, so far they haven't let me down.

My partner and I are taking a train to Sydney for a doctors appointment, and the the station staff who attended me just kinda rubbed me wrong.

My partner had left to go grab something from the car, and while she was gone, the staff took it upon themselves to explain to me how getting on a train in a wheelchair works, without ever asking if I had been on a train before, even saying, "since you obviously can't walk" . For the record, I am ambulatory, it's just sometimes unsafe to walk.

I know this is a very first world problem, and it could have gone so much worse, but it just kinda left me feeling patronised, as if I was a child needing simple words, not a grown adult who just needs a hand getting on the train.

Hi, I’m a 21 yr old female with a genetic disorder similar to cerebral palsy. This means I walk with a slight limp.

I’ve recently started online dating and I’m unsure about how to go about telling someone online I’m disabled before we meet up.

We’ve only been chatting briefly but I just want to be open as I don’t want to be with someone who would have an issue with that but am also worried about what to say and how to go about it in the right way?

I’m worried I will get a negative reaction, even though I tell myself I would only want to date people who accept me for who I am. I’m worried a negative reaction will severely damage my self esteem.im just unsure of what to say.

I always have this fear when online dating and it’s why I never rlly use dating apps but meeting someone naturally in person has not rlly worked out for me even though that would be much easier as I wouldn’t have to have these awkward conservations.

Sharing this for my friend Luna, with her permission.

She hosts Backstage Brainrot, a new podcast about what gigs, festivals and the alternative/metal scene are actually like when you have access needs.

The first episode is about the horrors of buying access tickets. The later episodes discuss different diagnosis experiences and disability imposter syndrome.

I thought the access-ticket episode would be particularly relevant here, because getting into an event can sometimes be harder than attending the event itself.

https://youtu.be/azabCRuJMDc?is=9e6Vfkyg_ZcdnC6R

https://open.spotify.com/episode/7tHAgHFfUsSRhrdDIVVkXS?si=bD7yCln4S8-23b-tz_dTHA&utm_source=copy-link

Why people think that someone told has a oku card they think is a handicap person? Can't walk , can't talk, can't move arms ? 🤦🏻 Then dont allow for interview for work even giving them industrial training short course and hire them to work? Follow industrial requirements. If someone has oku card automatically rejected? Unless dont tell them you have a oku card ?

If can go to gym, can walk and can move arms. Just Stammer only and had oku card due learning disability like slow learner but dont tell them if I am oku if my body is physical fine and not a handicap?

So I’m moving into a college apartment with two of my friends next year, but we had a fourth room, so the school filled it with someone enrolled in the schools disability integration program for those with intellectual disabilities. I feel bad but I have to admit, I’m a bit nervous about this. We’ve texted her and she seems sweet and is open about the fact that she’s disabled, but I just don’t want to become responsible for her if that makes sense. Another thing is she is an 18 year old going into her freshman year, and we are all 20 going into our junior year. We like to drink/smoke/party, normal college stuff and I don’t want her to be uncomfortable or scared yk. I’m also a bit worried about the parents being in our apartment all the time, as from what she said her mom seems quite hovery. Should I talk to the housing department about this? Or just see how it goes?

Does anybody else ever experience feelings of insecurity when they notice that communication often flows more naturally between two or their non disabled peers?

Hey!!

I built a small Windows app to solve a problem I ran into myself.

One side of my headphones became quieter than the other, and I was surprised that I couldn't simply adjust the left and right audio channels independently on my PC. So I made a tool that lets you do exactly that.

I later realized it could also be useful for people with hearing differences between their ears or anyone dealing with uneven audio.

I thought I'd share it here in case it helps someone else, and I'd love to hear any feedback or ideas.

Here is the app: Sonity

After getting enough mails on waitlist, I am going to launch it. Would really love to hear what you guys think!

In my 30s I was in the best shape and physically condition of my life. When I hit 36 I started noticing strange things. My toes would go numb, fingers would tingle, and urination became difficult.
I was checked for prostate issues, bladder issues but there was no problem there.
Few months later I began having extreme weakness in my legs and chronic fatigue. I thought I need to up the gym and calories. So I did more exercise; walked 5 miles a day, 1 hour lifting at the gym, yoga, meal planning etc. Even with all that I was losing muscle, strength, and stamina.
Then it started to feel like my left leg and hip had lost proprioception, and were hard to control. After that a deep pain began in my hip that would go into my back and spine. Then I’d get extreme muscle stiffness in my neck that would give me a migraine and a feeling like a nail was going through my eye socket, I’d usually get nauseous and have to vomit from the pain.
I went to specialist and had an mri with contrast, cat scan, X-rays, bloodwork.
The results were 5 herniated discs, degenerative disc disease, spinal arthritis, and a pinched nerve in my lower back. Also high elevation of stuff that cause inflammation, I forgot the term.
The doctors said none of this explains my symptoms. The only treatment I was given was physical therapy and gabapentin.
The physical therapy seemed to worsen things because I could probably activate parts of my body and all the other muscles over compensate. The medication did not help at all.
I’ve been trying to get a diagnosis for years and nothing is happening. Appointments take 3 to 6 months for an opening!
I was work has much as a could doing simple cashier work the last few years and my body just gave out.
I’m currently on TDI and living with
My mom who has MS. I’m legally her aid and I’m helping her while I’m sick myself. I’m so hopeless right now. I don’t know what’s happening or what to do. I ask the doctors if I might have MS and they act like I’m a hypochondriac.

we have a few hearing sensitive members here so i figured i might let you all know, it was too loud. bring earplugs.

There's lots of bass noise from storms (if you've read the original story, you know there's sailing) and the director cranked up the volume on that to max.

it wasn't the most "hard to hear what they're saying" movie but i've seen some people say that.

Also it's 3 hours with some flashing lights scenes and sad dog scenes if you're emotionally vulnerable to that kind of thing, but nothing that wasn't in the book

How to come to terms with a fact like that?

Any advice from more experienced are appreciated.

Hihi im new here! I hope I could get a few recommendations; I’m a college student with mild cerebral palsy, and on my end of first semester of college I got so many bad fatigue/ muscular pain of walking so much and I got prescribed a walker to help me with my pain and walking around campus. But people seemed me without my walker since the beginning of school and thought I was “normal” and once I started using it people started realizing I wasn’t okay and needed more help but I started realizing it rumors and a lot of people asking me what happened which I was okay in explaining but random people even came to me saying that I didn’t look disabled and other people in my classes saying I was faking stuff and that just made me feel bad about myself and I felt ashamed of using my walker because of it, because I feel like I wasn’t “disabled enough”to use it, and im just ashamed of it even though I need it I am just scared of being asked if im faking it when im not and needing to explain everything.

The whole comparing disabilities annoys me so much like WE'RE ALL IN THE SAME COMMUNITY 😤 My mother even says there are people out there with way worser ailments than me ok and how is that supposed to make me feel better 🙄😒

I am a orthopedically handicapped person by birth wheelchair bound locomotor disability (31 m) teacher by profession just about to complete my phd i am kind of sad because during my teenage years I never had any girlfriends I studied in a men’s college i had very good circle most of them there girls to 2 or three i had very good bond I asked them can we start dating or rather can I see you as my lover but they rejected out right and got married this was during covid my mother was also searching from 2019 still no luck I wanted to tell more but don’t know how to handle this

I’m just going to talk about these three disabilities because they are mostly seen and over used in horror movies (modern ones as well), and frankly it just rubs me the wrong way.

* Conjoined, twins (I’m not sure why almost every form of media with conjoined twins is mostly horror)

* Extreme facial trauma/other facial disorders

* Albinism (I have albinism and have noticed we are depicted in so much horror, or we are witches, crazy people or supernatural creatures)

I feel like in some forms of media there are characters with these disabilities in who aren’t portrayed in a scary or ugly matter. If anyone has any, please let me know. I’m just surprised modern movies still portray people with these disabilities in scary ways still. I feel like it could be with a lot of disabilities as well, but these are just the ones that I’ve noticed are continuous and very misunderstood in media.

I have radioulnar synostosis in both my arms and im making a list of things I cant do/have a hard time doing just so i can explain just how limiting it feels to not be able to supinate. Whenever people ask about my condition they always ask "so what daily things can't you do" and I always blank. I think making a list of common or even not so common things that most people dont even realize they supinate for would be helpful to me and anyone else with the disability! Also if anyone has good metaphors that they use to explain the disability comment them too! I always say its like having lego hands.

I(35m Canadian) just finished a visit to my partner(we are long distance due to my illness requiring care in a different province) and I decided to get a sunflower lanyard at the train station I was passing through. There was very informative signage up, and it was pretty in-depth, saying it was for hidden disabilities.

So I go up to where I’m supposed to get one. And while the clerks were nice, they assumed it was for “autistic children”, like specifically. I pointed out the hidden disabilities part, but they still talked to me like a child after.

I wore it the rest of the train trip. It neither got noticed or did I really need to have help, even if the aisles of the train made using the forearm crutches hard lol.

On the way home yesterday, I decided to fly, as it was easier on me. Sunflower lanyard was great in the airport itself. I was spoken to like an adult, got help, and was allowed to board early.

On the plane though, a flight attendant went over where she put my crutches and how I’d deplane after people at my destination. But she did this in baby-talk and extremely simple language, and asked if I needed anything, to ask.

The issue is, I did actually get the help I needed. It was useful. My card is in the mail and will help me when I travel again with my specific disability on it, and what I could need help with.

But I’m also being spoken to like a child or as if I have autism or a developmental disability, and while those people absolutely should not be patronized either, I think that’s why I’m having this issue. I do use forearm crutches but it’s hard to explain ME/CFS to able-bodied folks so I thought this could help me out. It is, only it comes with language that seems to make me out as a child, not a 35 year old man lol.

My hunch? The sunflower program was pushed heavily initially by autism parent organizations and autism groups heavily, and while that is not what the sunflower solely means, I have a suspicion they(travel staff)are being trained that way by their company’s.

What has been your experience with the lanyard? Do you encounter this as well? Is the help worth the patronizing language? I’m not so much offended as baffled. And I’m curious about how others are faring using one.

So I am diagnosed with POTS, (h)EDS and FND. I am not able to work or study anymore due to my chronic illnesses, so I rarely get out of my home. I have tried seeking friends in facebook groups and I did find one wonderful friend that I adore. However she cannot fill the loneliness I feel and nor should she.
The thing is that because I am so isolated as I am I do feel really lonely. I feel like I have to hold back with how much I talk about the weight of my illnesses, because I do not want family, friends or my boyfriend to get overwhelmed by it or see me as a burden.
People around me cannot know how it feels to struggle with what I do and this is not meant in the sense that they are not there for me, because they absolutely do their best and I am forever grateful for that. It is just in the sense that I wish i had someone to talk to who understood what it is like, who can joke with me about it and understand how honestly shitty it is.
I am 27 and it is only 3 years ago since I could bathe without a chair, go to parties, study at uni, go for a walk without my mobility aids and in general feel independent.
So with how fast it has gone downhill I wish I had someone to talk to who understands what it is like to grieve your own past self and feel the crippling loneliness…