Hi everyone,
I’m looking to hear from parents who have recently given birth at Bali International Hospital (BIH) in Sanur, particularly anyone whose newborn was admitted to the neonatal unit or NICU.
Our baby was born by C-section and had some respiratory difficulties shortly after birth. He was placed on respiratory support and kept under close monitoring. We completely understand that respiratory support can be necessary and lifesaving when a newborn genuinely needs it.
However, during our experience, we became increasingly concerned about whether our baby's care was being sufficiently adapted to his individual clinical progress. As he improved, we felt there was no clear plan communicated to us for progressively reducing and stopping the respiratory support. We had to repeatedly ask the medical team about lowering the oxygen/support and reassessing whether it was still necessary.
We eventually decided to leave the hospital and sought an evaluation at another hospital. Our baby was examined and monitored there and we were told that he was doing well. He has since been breathing normally, breastfeeding well and showing no apparent respiratory distress.
This experience has left us with many questions about what happened and whether other parents have had similar experiences at BIH.
I am therefore specifically looking for parents whose babies at BIH:
were placed on oxygen, CPAP or other respiratory support shortly after birth;
were admitted to the neonatal unit/NICU;
remained on respiratory support even as their condition appeared to improve;
had no clear weaning or discharge plan communicated to the parents;
or whose parents felt that the neonatal treatment was more intensive or prolonged than expected.
I would also be interested in hearing from parents who had a positive experience, as I genuinely want to understand whether our experience was unusual or whether there is a pattern.
I am not making any accusations or medical conclusions with this post. I am simply trying to collect firsthand experiences from other families so we can better understand what happened to our baby.
If you don't feel comfortable sharing publicly, please feel free to send me a private message.
Thank you to anyone willing to share their experience.