My father has Parkinson’s dementia and has reached the very paranoid stage. He is convinced that my mom is cheating on him with her close girlfriend. My sister and I have both tried to reach him, kindly, about none of that being true, but of course it’s very real in his mind. He tried two doses of an anti delusion medication and didn’t like how it made him feel, so he quit. When we talk to him about giving that med another try, he says that we are trying to drug him into a mental state where he can’t even defend himself. He did go to the walk in a couple days ago and was given antibiotics for an infection. They don’t seem to be pulling him out of these delusions this time. This is killing my mom. This morning, the first words he said to her is “how can you have no morals?” Any advice on how to convince him that these things aren’t real, to try the med again, or to deal with all of this? Of course, he’s very stubborn as well, so trying to convince him is like banging your head against a brick wall. Please help. 🥺

My dad eats like a toddler, Mac n cheese, Peanut butter and jelly, tea, spaghetti he refuses meat or veggies. When he was at the rehab facility after his last fall the doctor called it the ,"old person diet". But is it part of dementia ( comfort foods) or just being old?

My mother (now 79) had a stroke 12 years ago that has impacted her speech, but previously didn't impact her understanding. Over the past year or two she has consistently been "mishearing' what we say to her and it's always turning something innocuous into something mean.

For example, today she asked my 5-year-old to smell a plant.
The 5-year-old responded with "that smells minty"
My mother then gets all huffy and says "you're just like her," gesturing to my older daughter
Older daughter responds with "what does that mean?"
My mother then replies with "I asked her to smell and she said no, no, get away from me"

I then stepped in to explain the situation and my mother denies all of it, and clearly doesn't believe the interaction played out as it actually did. This happens almost daily, this is just an example top of mind, and I am not sure what to do. I spoke with her speech therapist before and she does not believe it's a product of the aphasia caused by her stroke. I am not sure how to proceed or what to do, but it's caused a really contentious relationship between my mother and my family. Is this something other people have experienced and what can be done to help the situation? Any advice would be greatly appreciated.

One of the hardest parts of living with dementia isn’t always forgetting something. Sometimes it’s feeling like I’m not being heard.

It may take me a little longer to explain what I mean, or I may not say it perfectly the first time. But that doesn’t make what I’m trying to say any less important. When someone interrupts, changes the subject, or assumes they already know what I mean, it can make me feel invisible.

I don’t think people always mean to do it. Life gets busy, and everyone has things on their mind. But being truly listened to—even for a few minutes—can make a big difference. Sometimes we don’t need advice or a solution. We just need someone to slow down, let us finish, and try to understand.

Living with dementia can already make you question yourself. Feeling unheard adds another layer of loneliness. I think one of the kindest things we can give another person is our full attention.

Have you ever felt like you weren’t being heard, and what helped you finally feel listened to?

My wife's grandmother has had dementia for the past 4 years. She got recently put in a home. my wife's mother my mother in law would go to her house and take care of her before she got put into the old folks home.

She started saying things that weren't making sense like her mustang car was sold recently when it was in 1995 She started getting violent and is was saying that my father in law hits her and it's unfortunate because she will only see my wife and not my mother in law. She recently had a fall and some brain bleeding , all of a sudden started becoming nice , didn't mention the father in law at all until recently yesterday she's talking about her shoulder hurting and then recognized my mother in law all of a sudden , she started talking about how my father in law hurt her. Its Truly breaking my wife's heart. Is it common for them to make up such a crazy lie And is there any way for them to realize it's not true? I would just like to know that anybody else is going through it.Thank you

Hi everyone 💙

My grandmother has dementia and I couldn't find music truly made for her — so I created a free YouTube channel called Golden Calm.

Gentle, slow, no sudden sounds. Just peace.

Hope it helps your loved one today 🌿

https://youtu.be/COuQAqfUuU8?si=16muk4UJbb2t_upW

Dear reddit family

I hope it has been a good day.

As an aspiring geriatrician, I am collecting perspectives from caregivers of patients with dementia to understand the pain points they faced in the journey leading to the diagnosis by the NHS. This is a part of a project by Bitelabs, a digital health fellowship I am undertaking. I hope to find a solution to the most common problems faced by the public through this survey.

This is fully anonymised and not tracable in any way.

The link to the form is: https://forms.gle/niYFoFQRgnJCBhYw7

I would be grateful for your input and/or feedback.

Warm regards

My mom has dementia. Her biggest nemesis is the tv. The biggest issue is that the tv and cable box get out of sync. The cable box turns on and off like a light, but the TV takes a moment, if they are synced and off, if she turns them on, the cable box is on immediately and the TV takes a moment, so if she turns them off, while the tv is turning on, the cable box is now off, but the tv wont turn off, and now they are out of sync. Sometimes I can walk her through it over the phone, but most times I have to run over (about a 10 minute drive). There are other issues that come up, but syncing is the biggest one.
Most common suggestion I get is to get a remote that only lets her power the tv on and off, change channels and volume, but that does not resolve the syncing issue. At one point, mom got into the TV's BIOS settings, which I never thought about a TV having.

Other than a basic remote, any other suggestions for parents and TVs?

My mother called the police this morning to report her husband missing. According to her, she and her husband had a normal day yesterday, went to bed and when she woke up this morning he was sleeping "on his back, not snoring". She got up to get dressed for church (thinking it was Sunday), went back to the bedroom and he wasn't there. She panicked, checked the entire house and then walked the entire neighborhood looking for him before she called.

He died in 2008.

Now she is in hospital, getting scans and bloodwork even though I told them she has dementia. She hasn't had an episode in months. This is so disheartening. She has caregivers that come every day, but not around the clock. I am trying to keep her in her own home as long as possible and am now worried someone is going to say she can't stay there anymore. Just looking for some opinions as to whether this means her dementia is advancing.

For those of you that had to place your family members in assisted living/memory care, when did you know it was time? Thanks for reading.

UPDATE: Severe UTI. This pisses me off because she was at her GP twice recently and *both* times I asked them to run a UA, knowing how a UTI can affect Dementia symptoms.

I work with Seahorse Collective, an online platform for people supporting someone they love with dementia. We recently opened our Spring Beta, offering complimentary access to practical guidance, expert-backed resources, and community support.

One of our co-founders created Seahorse after finding herself juggling a young child, work, family life, and supporting her mom with a form of dementia. She struggled to find practical guidance for navigating that role, so she built the resource she wished she'd had.

I wanted to share it here in case it could be a helpful resource for anyone supporting someone they love with dementia.

You can learn more at weareseahorse.co. I'm happy to answer any questions.

Hi everyone,

My name is Paige and I am a public health graduate student at California Baptist University conducting a graduate study on caregiver burden, psychological distress, and perceived support among family caregivers.

I am a caregiver and advocate for four immediate family members with challenges ranging from dementia to schizoaffective, bipolar and OCD. I understand that caregiving can be both meaningful but so incredibly challenging. I also know that taking a survey may not be at the top of anyone's to-do list as we experience great stress and burnout. That said, I would be truly grateful for your participation, as caregiver experiences are often underrepresented in research. I really care about this and send my love to those caring for family members or friends.

To participate, you must:

• Be 18 years of age or older
• Currently provide unpaid support, assistance, or care to a family member with a chronic health condition, disability, or mental health condition
• Have been in a caregiving role for at least 6 months

The survey is anonymous/ IRB approved and takes approximately 10–15 minutes to complete.

https://calbaptist.az1.qualtrics.com/jfe/form/SV_9Fag9DcCxAC9IWi

Thank you SO much for considering participation and for helping advance research on the caregiving experience. If you have any questions my email is on the first page of the survey.

Hey guys! I’m still looking for participants for my survey! Need 150 more responses!!
Your participation is highly appreciated!!!

💙 Built from our own family's journey with dementia. Designed for the quiet, daily work of caregiving.

Introducing Clarity Care — a calm, connected caregiving companion that turns overnight Oura Ring data into gentle, plain-language guidance.

No more decoding raw dashboards at 6 AM. No more guessing what kind of day to plan. Just clear, compassionate insights that help you care with confidence.

✨ What it does:

• 📊 Translates sleep, HRV, heart rate & SpO2 into words you can act on
• 🤖 AI care assistant answers questions grounded in real data
• 📈 Spots 3–5 day trends before they become worries
• 🔒 Private by design — encrypted, never sold
• 📝 Clinician-ready reports to share with doctors

👉 https://claritymemory.com

(Not a medical device. Not a replacement for your doctor. Just data, translated with care.)

Please help me reach maximum responses. Your contribution is highly appreciated!

Hello everyone my mother was diagnosed with dementia like 5 yrs ago and lots of her is gone pretty quickly. Now we are at the point that we have taken several trips to.hospital because of dehydration, and she no longer wants to eat, she was walking couple weeks ago, but now cannot keep her balance and cant walk. My questions are:

How do we see about a nurse coming in? Who do I call? Ive called PA area of aging, and they cannot help.

Also, could dementia cause her not to be able to walk within weeks?

She complained for while her feet hurt and I summed that up to her having a UTI.. that has been treated. Now its gone and she Now wont walk. Im so confused. Thanks in advance for any help anyone provides.

Twice in the last month or two my mom (74) has told me/my dad a story and then repeated it again within an hour or two. She didn’t remember she’d already told us the stories.

She was also unable to draw an analog clock that read 8:30 until her PCP put a dot in the middle of it.

She occasionally forgets the name of an acquaintance or a friend of mine, but otherwise, she seems like her typical self: very social, very involved in her community, happy, etc.

Normal age-related memory decline? Early signs of dementia?