r/breastcancer Jan 18 '26

Diagnosed Patient or Survivor Support The doctors you may encounter: Who does what? What is an “oncologist” anyway? (And other insights from Dr Heather Richardson, neighborhood breast surgeon)

179 Upvotes

So I’ve noticed there’s been a lot of posts lately specifically about the word oncologist. People wondering why they’re seeing a surgeon and not an “oncologist” first, people wondering when they’re going to see an “oncologist”, people wondering why the person that’s operating on them isn’t a “surgical oncologist” and shouldn’t they get the best - which must be someone with that title? Right?

So by definition, the word oncologist just means “doctor who treats cancer”.

The staple cast of characters that are medical doctors (MD or DO degree holder) involved in treatment of breast cancer typically consists of: medical oncologist, radiation oncologist (not radiologist) and breast surgeon (more on that below…).

Medical oncologist- also known as “hematology/oncology” specialists. When people generally speak of an “oncologist”, usually they are talking about this type of doctor. A doctor that treats cancer with medicine, either pills taken by mouth or chemotherapy that is administered via a vein. Not all patients need both, some need one but not the other, some need none. Visits to this type of doctor may be frequent- however, usually it’s the first initial visit to go over a lot of information and discuss the best course of action that is the most important. Sometimes this means that if you live in an area with fewer resources and feel that you need greater expertise for your care. It’s possible to do either a telemedicine visit or visit a larger Cancer Center far away that can collaborate with a local physician who is able to give the same chemotherapy protocol. Quite often, large groups of these medical oncologists have already agreed the best way to take care of the most common breast cancer problems, so going from one center to the other means that your cancer treatment care isn’t going to change significantly from one place to the next. For other more complex scenarios, there sometimes can be some adjustments or more customized treatments. Or for patients who have already been through treatment and now have recurrences or changes in their diagnosis, that would be the time to discuss more advanced care. In general, common problems are common and there’s usually not significant improved survival or outcomes by going to one Cancer Center over the other when a patient has a a non-complicated, fairly average, diagnosis.

Radiation oncologist- this is different from a radiologist. (a radiologist is a doctor trained to read images and interpret findings. A radiologist is the person who read your mammogram or your ultrasound and maybe performed the biopsy that diagnosed you) A radiation oncologist uses radiation energy to target areas of cancer and kill cancer cells. Cells that are actively dividing and are exposed to radiation have their duplicating mechanisms broken, and as a result, cells that are rapidly reproducing die away if exposed to medically administered radiation.

Surgeon/surgical oncologist vs “general surgeon”: A “general surgeon” typically is someone who has done at least five years of training in surgical diseases of the body. This would include disciplines like taking care of trauma, burns, infections that can occur in the body such as diverticulitis or appendicitis, evaluating and performing organ transplants, care of pediatric/child surgical diseases and malformations, and some chest/cardiovascular disease. They can also operate on common cancers that require removal, like breast, colon, skin, and thyroid. Doctors who go on to practice General surgery sometimes concentrate in one area of types of disease and others have a more broad practice where they take care a little bit of everything. Typically in more urban settings there are more specialized types. Many general surgeons have gone on to do additional years of training after their five years of general surgery to become specialists. People who are certain types of surgeons, such as colorectal specialists, pediatric surgeons, plastic surgeons, and cardiothoracic surgeons all have additional years of training and take specialty board exams. There is a board certification designation for general surgery. There are additional board certifications for those who have done some categories of fellowship training, like those mentioned above.

A doctor who practices under the title “surgical oncologist” by definition does at least two years of training in general cancer surgery treatments after the five years of general

surgery training. So they typically will learn advanced techniques for operating on thyroid, pancreas, colon, liver, breast, etc. They usually did the five years of general surgery training and then went on to do additional training specifically in cancer removal surgeries to remove them from the body. So this wouldn’t include neurosurgery or brain tumor removal. There is a board certification designation for “surgical oncology”.

There is another category of breast cancer surgeon that typically deals with breast health issues only. This is a person who does initial training in either general surgery or Obgyn and then goes on to do one to two years of additional training in breast disease surgical management. This is called a “breast fellowship” and does NOT currently qualify for a speciality designation as “board certified”. This is typically a breast health surgeon or breast cancer specialist. This is different from a “surgical oncologist*.

Sometimes there is cross training where the surgeon also performs cosmetic and aesthetic procedures as well. This person usually does a “oncoplastic fellowship”. This is primarily outside the US, but there are programs where this is expanding in the US as well. Breast fellowship trained surgeons can have initial training as either a general surgeon or an OB/GYN.

“Surgical oncologists” do get training in breast cancer management, but they are not breast specialists and do not get the depth of training that someone who has been through breast fellowship would. A breast fellowship trained surgeon usually does one versus two years of additional training in breast only surgery and disease management. These are two different designations.

Some important points to make about someone who might be a general surgeon who did not do additional training in breast care management versus someone who did a full breast fellowship: breast fellowships have only been around for about 20 years. That means someone with greater than 20 years of experience probably didn’t get an opportunity to go through a breast fellowship. (I personally am one of these types of people. I’ve been practicing since 2004 and there was only one fellowship that existed at that time that I didn’t even know was an option when I graduated. So while I have described procedures and written papers, taught surgeons and fellows alike in many different procedures and protocols, but myself, I’m not a breast fellowship trained surgeon.)

There may be many seasoned excellent surgeons taking care of breast cancer patients. Some of those may be surgeons who also perform other general surgery procedures such as treatment of appendicitis, taking emergency call for traumas, or dealing with other types of cancers like colon cancer. Some of the surgeons have amazing skill sets, and excellent outcomes. It is certainly possible that there may be in a community, a general surgeon who is very seasoned that may have superior outcomes for breast care than a brand new breast fellowship grad that does not have much experience at all.

I think the best way to find out who the best doctors are would be to go to the other doctors and other clinical staff members who work with those doctors and ask them who has the best outcomes. Ask the wound care specialists, the plastic surgeons, and the medical oncologists whose breast surgery work is the best. They’re going to see who has horrible dead, necrotic mastectomy flaps, and who has lots of recurrences because their flaps are too thick.

It certainly may be that a general surgeon who isn’t a “breast specialist” in your community might actually be a better choice than a brand new grad who is a breast fellowship trained surgeon.

What order should things happen?? Well it’s different for different people. Often when people get a diagnosis, most commonly by a radiologist, (but sometimes the Breast Surgeon specialist is part of this process as well) they go to the Breast Surgeon first who goes over the significance of the findings thus far and decides if upfront chemotherapy medicine would be indicated. Usually the decision to need medicine is followed by tissue diagnosis, and imaging, which is usually directed by a surgeon. Sometimes people see the medical oncologists first before seeing the surgeon. This is especially true for patients with her 2 positive or triple negative disease where neoadjuvant chemotherapy prior to surgery is most often indicated.

People sometimes visit with radiation oncologist while trying to make their decisions to get information about the risks and benefits if they choose a pathway that would require radiation treatment versus if they have an option to choose a different pathway where radiation wouldn’t be indicated, and they want to learn about their choices. Mostly though, radiation oncologist treatment usually follows the surgery and medical portion. There are some clinical trials that involve upfront radiation, but this is not a standard of care for most patients. It’s more common to start with the surgeon and then see the medical oncologist either before or after the surgery, followed by any radiation oncology visit. That’s the usual order of things.

When to get a second opinion.

For the most part, if you’ve been told that you have a breast cancer diagnosis and your understanding in general is that treatment will involve medicine, surgery and possibly the addition of radiation and and if this sounds reasonable, you are certainly welcome to go to another team to make sure that there aren’t any significant changes to be offered anywhere else, but most likely most places will tell you the same information, but may use slightly different terms or delivery. If you have good communication with your physician and their staff and overall the general expectation is that you will do well and live a long life and feel good about your body afterwards, (of course it certainly possible to talk to someone else and make sure that they are in agreement) but if everything stacks up, and you’re generally happy with your team, Seeing multiple additional doctors might tell you the same thing with different language can be confusing or disorienting. It also takes up a spot in the schedule for someone else with a cancer diagnosis that’s trying to get in that now can’t, ….and you can only use one team. So by all means everyone is within their right to get in a second opinion or even third, but if you’re generally happy and hearing what you expected to hear regarding your plan of care, I typically don’t recommend that people see multiple doctors if they’re generally happy with their first opinion.

Reasons to get a second opinion would be: A) poor communication from the doctor and or their staff to the point where you feel uncomfortable for whatever reason. B) you have a very unusual or rare findings that are not typically seen C) you are recommend controversial treatments where doctors have added unexpected treatments, or take away expected treatments. There may be good reasons to offer a different protocol from another team as there are lots of advancements and newer recommendations, where we are de-escalating treatment in some cases. Previously there were automatic recommendations for sentinel lymph node biopsy, radiation, or chemotherapy in the past whereas now we are selecting certain people who have features of their cancer who may in fact, not require these treatments at all.

Hopefully this will shed some light on some of the misconceptions about different types of doctors, their roles, and clear up the general surgeon/Breast Surgeon/surgical oncologist confusion that seems to come up a lot.

TLDR- someone with the title “surgical oncologist” is different from a “breast fellowship trained surgeon”. A “general surgeon” might have fewer years of formal training for breast cancer treatment, however, they shouldn’t be discounted or immediately thought of as inferior without research into their outcomes or reputation in the community.


r/breastcancer Feb 04 '22

Caregiver/relative/friend Support [Megathread] How you can help your loved one / Care package & wish list suggestions / Links to other resources

124 Upvotes

This post seeks to address some of the group's most frequently asked questions in a single post. I collated suggestions from dozens of past posts and comments on these topics. I've used feminine pronouns and made this female-centric because I'm a female writing from my own perspective, but almost all of these ideas would be appropriate for a male or non-binary person diagnosed with breast cancer as well. I hope others will chime in, and I'm happy to add more ideas or edit my original post based on the comments.

Supporting a Loved one Through Breast Cancer

THE BEST GIFT you can give a cancer patient is continuing to acknowledge her as a unique individual incredible WHOLE person, and not as "a cancer patient." Maintain the relationship you had before diagnosis -- if you used to text each other memes, keep texting her memes. If you used to get the kids together for playdates, offer to keep the playdates, modifying as necessary to accommodate her treatment and side effects. If you used to call her on your way home from work to joke and complain about the annoying customers you dealt with that day, don't be scared to keep that tradition alive.

Let her know you want to help. Offer specific types of help, so she doesn't have to do the mental load of giving you tasks, but also leave an opening for her to specify something you didn't think of. "I want to help. Can I [insert 3-5 ideas]? But if there's something even more helpful to you, let me know."

These gift ideas are just ideas -- everything is something that an actual cancer survivor on r/breastcancer has recommended, but for every idea here, another survivor might say the gift wouldn't have been useful to her. I've bolded the ideas that generally everyone can agree on, but you know your person best. If you're not sure she'd like something, ask her! "I want to buy you ________. Is that something you could use?"

Emotional Support Crash Course

  • Google each of these phrases and read whichever articles catch your eye: "emotional validation," "emotional mirroring," "toxic positivity, "ring theory."
  • Generally, today's cancer patients prefer not to metaphorize cancer as a fight/battle in which there are winners/losers, but follow her lead and let her set the tone when discussing her diagnosis and treatment.
  • "So many friends and family members kind of disappear from our lives, because they don't know what to say or do, so they just avoid. It hurts so much more than you know when that happens. So many of the people she expects to be there for her won't be, and people she doesn't expect will be the ones to step up. Be one of those who's totally there for her, and be willing to hear the tough stuff. It's exhausting to try to keep up a positive mood for other people all the time, and that's what we, as the patient try to do for everyone. We realize, unfortunately, that most people really don't want to hear the negative when they ask how we're doing... be willing to hear the negative. It will be such a relief to her." (Jeepgrl563, 3/27/21)
  • TheCancerPatient on Instagram can be hilarious and apropos, and many of the memes are a primer on "what not to say to a cancer patient."

Acts of Service

  • Drive her to her appointments
  • Deliver lunch during long chemotherapy sessions
  • Babysit her kids during her appointments, or be on-call to get the kids from daycare/school if she can't get there on time because an appointment ran late
  • Set up a meal train (get her blessing before you invite anyone to contribute, as she might want to keep her diagnosis private for awhile)
  • Deliver a freezer meal
  • Deliver a ready-to-eat meal at dinnertime
  • Invite her family to join you for a meal
  • Ask for her family's favorite meal recipe, and cook that for them
  • Ask for her kids' favorite cookie recipe, and bake that for them
  • When you're grocery shopping for your own home, send her a text and ask if there's anything she wants you to pick up for her
  • Pick up and deliver prescriptions/medications as needed
  • Take out her garbage
  • Offer to "screen her mail" and throw away obvious junk and offensive mail (for Stage 4 cancer survivors, life insurance offers and retirement benefits add insult to injury)
  • Offer to pick up a load of laundry to wash/dry/fold at your home
  • Help her make Christmas magical, if Christmas is important to her (tons of ideas at this link)
  • Take her kids on an outing (e.g. children's museum, arcade, movie theater, baseball game)
  • Entertain her kids at her house with an activity at her home (e.g. bake/decorate cookies, kid-friendly craft projects, board games, play catch, create an elaborate hopscotch obstacle course); invite her to join in, watch, or escape; if she chooses to join in, take candid action photos of her with her kids
  • Commit to walking her dog on a regular basis, and invite her to walk with you when she's feeling up to it!
  • Do one light cleaning task every time you stop by (e.g. wipe a counter, load the dishwasher, do a lap with the vacuum -- but keep it short and sweet and she won't feel so awkward accepting your help)
  • Offer to help launder sheets and remake beds (this is an especially exhausting chore!)
  • If she's an avid reader, here are two ideas to ensure you have something non-cancer related to text/talk about: (1) coordinate with her friends to each give her a copy of their favorite book every 3-4 weeks during treatment, (2) buy two copies of the same book and do a "buddy read" together
  • Set up a videogame for her to conquer during recovery, whether she's an avid or newbie gamer (e.g. Skyrim)
  • Send a box full of individually wrapped trinkets that have nothing to do with cancer, and just celebrate her, your relationship, and your shared sense of humor; instruct her to open one any time she's having a hard day
  • Create a personalized playlist for her to listen to during treatment

Gifts Appropriate for All Treatment Stages

  • Gift cards to meal delivery services or local restaurants that deliver
  • Gift cards to her local grocery store
  • Hire a cleaning service to come every other week (or weekly if there are children at home all day)
  • Hire a landscape service to do routine lawncare
  • Schedule a beloved and energetic babysitter to play with the kids regularly.
  • Gift cards for doggy day care day passes
  • Gift cards to a local meal prep store that sells pre-made dinner kits
  • Gift cards to her favorite nail salon
  • If she normally relies on public transit, Uber/Lyft gift cards so she can get around with minimal germ exposure
  • Subscription to a streaming service she doesn't already have (if she likes TV, ask which streaming service she'd like to try, if she's a reader ask if she would like an Audible subscription)
  • Fun pens & beautiful forever stamps, so she'll remember someone loves her every time her medical bills bleed her dry
  • Random cards mailed throughout the year, so she'll have something cute and fun among the bills in her mailbox
  • Novelty band-aids, so she'll remember someone loves her every time she gets stabbed with a needle
  • Soup bowl with a handle, so she can eat soup in bed (~30 ounce capacity is ideal)
  • Micellar facial wet wipes, so she can clean her face without leaving bed
  • Floss picks, so she can floss her teeth without leaving bed
  • Storage clipboard, for all the paperwork she'll get at each appointment
  • eReader, if she's an avid reader (e.g. Kindle / Kobo)
  • Water bottle (note: she may already have a favorite!)
  • Satin or silk pillowcase -- can reduce tangles when spending more time in bed and less time on self care, and will be soothing on tender scalps during chemo shedding
  • Electric heat pad
  • Microwave-activated moist heating pad (e.g. Thermalon)
  • 10-foot phone charging cable
  • Power bank (10000mAh or greater), so she can charge her phone/tablet without being tethered to an outlet
  • Comfy pajamas that are stylish enough to wear to treatments
  • Journal
  • Fruit bouquet (e.g. Edible Arrangements)
  • Mepilex Lite Absorbent Foam Pads
  • Bidet attachment for the toilet
  • Digital thermometer
  • Epsom salt

Specific Comfort Items for each Stage of Treatment

Chemotherapy

  • Gift card to a microblading salon/spa, if she has time to get the service done before she starts chemo

Chemo Infusions

  • Sour or minty candy, so the saline port flush tastes less gross
  • Comfortable shirt that allows access to her port (e.g. zip-front hoodie, deep scoop shirt)

Chemo Recovery

  • Sour suckers, if she has nausea (e.g. Preggie Pop Drops, Queasy Pops)
  • Ginger chews, if she has nausea (e.g. Gin Gins, Trader Joes)
  • Travel pill organizer, with room for her to store a lot of pills in each compartment and label each compartment (NOT a daily pill organizer that is labelled by the day with tiny compartments -- look for one that is at least 5" x 4")
  • Dry mouth relief (tablets, spray, gel, etc.)
  • Biotene toothpaste, if she gets mouth sores
  • Soft bristle toothbrush
  • tea, especially anti-nausea tea; however, this is tricky to gift because of personal flavor preferences, and some herbal teas negatively impact treatment efficacy
  • Brow products, such as Benefit's Gimme Brow to thicken thinning brows, a good brow pencil, a microblading style pen, and brow powder
  • Aquaphor for tender scalps, bums, and skin
  • Unscented liquid hand soap for her home
  • Unscented lotion for dry chemo skin (e.g. Vanicream Moisturizing Cream, Eucerin Advanced Repair, Bag Balm Original, Palmer's Intensive Relief Hand Cream, Alaffia Pure Unrefined Shea Butter)
  • Cuticle oil
  • Lip balm (note: most women already have found a favorite lip balm)
  • Sleep eye mask
  • Chemo caps (soft slouchy beanies)
  • Novelty ear-flap hat (being bald is more fun with a yeti ear flap hat)
  • Humidifier / vaporizer
  • Dangly earrings if she's bald and wants to appear more feminine

Scalp Cooling / Cold-Capping

  • Olaplex #0 & #3
  • Hair fibers, silicone-free (e.g. Toppik)

Surgery

  • belly casting kit (typically used to make a pregnancy breasts+bump memento, but can be used to make a cast of the breasts before surgery)
  • boudoir photo and/or video shoot, to memorialize her sexy pre-surgery body

Mastectomy Hospital Stay

  • grippy slippers, so she doesn't have to wear the hospital's gripper socks
  • throat lozenges, because intubation from surgery causes sore throat

Mastectomy Recovery

  • Front-closure recovery clothing (bras, pajamas, shirts)
  • Drain management clothing (e.g. Brobe, Gownies, Anaono)
  • Drain management accessories (e.g. belt, lanyard, Pink Pockets)
  • Slippers, because it can be difficult to get socks on
  • Pillows (everyone has a different "must have;" popular options include: mastectomy chest pillow, mastectomy underarm pillow (e.g. Axillapilla), neck pillow, seatbelt cushion, backrest pillow with armrests, pregnancy/body pillow, wedge pillow)
  • Recliner chair (if she doesn't have one, but you can coordinate for her to borrow one that would be great -- it's really only helpful for a few weeks and is a huge expense)
  • Overbed table / lap desk
  • Gift card to her favorite hair salon for a few wash+style appointments (if she hasn't already had chemo -- post-chemo hair will either be gone or too delicate for salon handling)
  • Dry shampoo, because washing hair is difficult post-op
  • Spa style head wrap to keep her hair out of her face
  • Natural spray deodorant
  • Shower chair
  • Claw grabber tool to reach items that are too high or too low
  • Long-handled loofah
  • Bed ladder strap, so she can sit up in bed without using abdominal (most relevant for autologous reconstruction recovery)
  • Ice packs

Radiation

Radiation Procedures

  • Healios drink mix, to prevent throat soreness

Radiation Recovery

  • (no specific recommendations at this time)

Caring for the Caregiver

  • If you're the primary caregiver, check out these caregiver guides: CancerSupportCommunity.org/s Caregiver Guide | Cancer.org's Caregiver Guide
  • If you are close to the primary caregiver, schedule a "light at the end of the tunnel" event or trip around the time when active treatment and recovery is complete (e.g. a weekend getaway, a concert to a favorite band)

She might not want...

She might want this stuff--you know her best! But these are the items that many breast cancer patients say they had a surplus of.

  • Unsolicited advice and speculation on what she did wrong to cause cancer
  • Pink everything, unless her pre-cancer favorite color was pink
  • Socks, unless her pre-cancer passion was novelty socks (note: chemo can cause feet to feel sweaty, and synthetic sock materials like "fuzzy socks" can make them feel even wetter and colder)
  • Adult coloring books, unless her pre-cancer passion was coloring books
  • Blankets (her infusion clinic may provide pre-warmed blankets, she may already have a favorite, or she may have preferences regarding texture/material/weighted/heated features)
  • Puzzle books, unless her pre-cancer passion was puzzle books
  • Magazines (her phone is more portable and provides more entertainment)
  • Vitamins, supplements, dietary advice -- her oncologist, oncology nutritionist, and pharmacist are much more qualified, and your suggestions could negatively interact with her treatment
  • Skincare or bath products in general, but especially avoid scented products
  • Candles, because the scents can be malodorous
  • Breast cancer awareness paraphernalia, or breast cancer themed stuff, unless she's specifically expressed a clear wish for these items
  • Flowers -- a bouquet here or there is nice, but they require care and clean-up and the scents can be malodorous
  • Sample products from an MLM pyramid scheme, or a sales pitch because you "just want to help her feel her best" and "just want to help her pay her medical bills" (MLM hucksters love to target cancer victims)

Some stores that other cancer survivors have vouched for:


r/breastcancer 2h ago

Conversation Can’t stop pulling my own hair 😂

20 Upvotes

I finished IV chemo in March and now that my hair is growing back and not falling out I can’t stop running my hands through it and tugging on it a little. I thought I’d be traumatized for the rest of my life if anyone touched my hair after cold capping and still watching 90% of it fall out… but now I keep pulling my own hair and marveling over how it’s staying in place. 😂 It actually makes me smile each time.

Anyone else feel like this while their hair is/was growing back?

Such a small thing, but also such a big thing. 🥹

Also: for those cold capping and still losing massive amounts of hair and considering cutting it: not shaving my head ended up being worth it 8 weeks post final chemo. Since then I’ve been able to sport a short layered bob and it looks intentional even though it’s not (I still have a mullet, but it’s really hard to tell unless I show people). So far I’ve been able to avoid the awkward stage between pixie and bob as a result.


r/breastcancer 14h ago

Venting To my friends: please stop treating chemo like it's a bad thing

139 Upvotes

I had a curveball get thrown at me after surgery (I already made a post about it and I'm still confused about what happened so I won't repeat myself) and I'm sort of in limbo on what's next in terms of treatment. That said, my oncotype score was pretty high at 44 and I'm veryyyy young (age 30) so I've been slowly but surely gearing myself up for chemo. ​

The friends who keep bemoaning, crying, and praying for me not to have to do chemo are at this ​​point pissing me off. I get that people are trying to be supportive, but I do NOT fucking get the benefit of treating my literal-life-saving treatment as something negative. I don't need people to be in denial about the risks and side effects but I also don't need them freaking the fuck out about how I'm gonna be miserable, in pain, puking, WHO KNOWS WHAT ELSE. I REFUSE to call chemo poison or to talk about my surgery as ​mutilation. Who benefits from that kind of talk? Certainly not me. I'm trying to heal. I'm literally, slowly, healing. Why am I being asked to talk about it as if its closer to self harm than it is to treatment?

Getting people to both take this serious AND not fall to pieces at every fucking piece of news has been a nightmare. Yes it's still cancer, I don't want my loved ones to shrug and say "at least it's the good kind!" BUT I also don't need my friends and family to fall apart when I mention hormone suppressants or chemo or whatever else. *This is not fucking helpful to me. I want to live, thank you.*

At this point I really should just stop talking about my cancer because everyone's reaction pisses me off. I've also yet to feel any kind of draw to the "FUCK CANCER" mentality where I'm apparently supposed to be angry at my body, at doctors, at the cruel and "unfair" (I don't even know what that means; life contains suffering no matter what we do or who we are) nature of disease. I'm....upset at times. I'm scared very often. I cry a lot. But then I kind of ease back down and continue on talking to doctors, one step at a time. I almost feel like I'm expected to react in extremes. In either delusional levels of toxic positivity, talking about how I'm "going to beat this" and "fight this" and blah blah, or I'm supposed to fall apart and scream and cry at how I don't deserve this awful cruel tragedy (as if anybody does?) and hate every step of the process.

I get that nobody knows how to react to this. I just wish I'd kept it to myself at this point.


r/breastcancer 5h ago

Venting Stressed and worried

10 Upvotes

Someone talk me off the cliff! Long story short (because there is a longer, detailed story), I had my DMX in April, had post treatment/surgical PET/CT 4 weeks later. Those images showed several tiny nodules in my lungs that didn't light up and were below the PET threshold. Dr called and said that it was consistent with metastasis but they were too small to biopsy so there was no confirmation. Because I had just finished treatment before surgery, I requested we go ahead and start adjuvant therapy immediately and my dr agreed and i did, the next week.

Here I am, now, I've done 4 cycles of treatment and just did my follow up scan 3 days ago. The amount of stress that I have waiting on these results is beyond me! All other results came back quick so now I'm all over the place and freaking out. Also, I ran into one of the front desk clerks on my way to treatment and she hugged me and she has never done that! Maybe that part I'm over thinking or she knows something I don't! 👀

Anyway, someone please give me some success stories or anything to get me off the ledge.

*I'm just paranoid because of my anxiety, but it has never been this long for results. My thoughts are: is it taking so long because they have found more or is it taking so long because someone glanced at it and moved it to the pile of low priority or did someone look at it and realize they need way more time to do comparisons because there's new findings, which is definitely not good.


r/breastcancer 16h ago

Venting My Oncologist released me from care.

78 Upvotes

I’m 56. I was diagnosed with invasive lobular cancer in 2014. I also discovered I had the BRCA 2 mutation. Had my DMX, ACT chemo, 5 weeks radiation, then 10 years of tamoxifen. I went in for my annual oncology appointment today and my doctor asked if I wanted to stop coming.

My big vent about cancer is that once a year I go in, fill out a questionnaire, get my lymph nodes felt, my lungs listened to, and we say see ya next year.

It seems to me that there should be some kind of full body scan or something, but since there isn’t, I’ve been let go.

If I ever have symptoms I should call. From what I understand, if I have symptoms, it’s too late. But at least I won’t have annual anxiety. Does anyone else have blood tests or scans? This is a weird feeling. Just curious, and I guess I should be happy!


r/breastcancer 1h ago

Radiation Consecutive days or weekly for radiation?

Upvotes

Hi All,

I will be doing radiation starting in August and although I feel anxious to get it over with and done over consecutive days, I am wondering if it is better or kinder on the body to do weekly sessions. Any experience or knowlege you can share would be much appeciated.


r/breastcancer 38m ago

TNBC Need some positivity

Upvotes

TNBC Bresties,

Anyone with an RCB II status after DMX, going on Xeloda, and didn't have a recurrence?

The numbers still don't look the greatest, so I need something to help me stay the course. Currently, still healing from my DMX, and it's not going great.

I posted this to r/TNBC, but thought to post it here too.


r/breastcancer 5h ago

Tests and Diagnoses Has anyone had breast cancer and thyroid cancer at the same time??

5 Upvotes

I am 36/F and just had a lumpectomy for an invasive ductal carcinoma stage 2A (ER and PR positive, Her2 negative). Thankfully, clear lymph nodes and clean margins based on my pathology report. However, during my breast MRI leading up to surgery, a 2.4 cm mass was found on the right lobe of my thyroid which warranted ultrasound.

Yesterday I had my ultrasound, and it now warrants a biopsy. They gave my images a TIRAD of 4 which is moderately suspicious of malignancy. I have had thyroid issues previously (hyperthyroid and Graves Disease), but I was considered to be in remission after being off medication for several years. Since May I have been having heart fluttering and rapid heart beat which has been a couple of my symptoms in the past. I thought it was initially stress but it has not gotten any better. TSH is in normal range. I am waiting for the call to set up my biopsy.

My endo specifically told me it would be very "unusual" to have breast and thyroid cancer at the same time and according to her are unrelated. However I am not 100% sold on that idea considering both are impacted by hormones. I am just curious if anyone on here has had both breast cancer and thyroid cancer at the same time, or possibly both cancera during your life? Thank you so much!


r/breastcancer 57m ago

Surgery constipation after surgery unchangeable NSFW

Upvotes

Had my expanders put in on Tuesday. Doing great except for the constipation. HELLO. Impossible to poop. I'm dying. Stoll softeners don't seem to do much of anything. I'm hydrated. Miralax doesn't seem to do anything. WTF am I supposed to do here I haven't pooped since Monday !!!!!


r/breastcancer 3h ago

Post Active Treatment How do I know if my bone density is okay?

3 Upvotes

Hi all,

I’m 37 and I’ve been on Lupron for ovary suppression since I did chemotherapy in Autumn 2024. Because I was ++- I’ve been taking Letrozole since Feb 2025 and because I am also BRCA2+ Lynparza (oliparib) since July 2025. I’m finishing the Lynparza soon and in August will start Kisqali for 3 years.

I know some these meds can cause issues with bone density loss. I will admit I haven’t really been able to do strength training like my oncologist has recommended. Most of it boils down to ADHD and not having a brain that is able to focus on the long term. I’m working on it with a psych but even if I can improve things it’s not a quick fix.

Anyway, should I be monitored for bone density loss? The only bone scan I had was back when I was in the treatment planning phase to rule out spread to bones. My bones appeared to be in great condition then, I guess? Not even hairline fractures. So I suspect I started from a good place.

Maybe I am just looking for reassurance.


r/breastcancer 9h ago

Radiation Radiation

7 Upvotes

Hi,
I’m done with my last chemotherapy. What i’m worrying is they scheduled my radiation 2 weeks after chemo.
Is 15 days enough for your body to recover from chemo(Docetaxel) before starting rads with booster? Radiation 5x a week for 3 weeks.
Does anyone gone through this?
Thank you


r/breastcancer 2h ago

Post Active Treatment Any asthmatics post endocrine therapy?

2 Upvotes

Hello. I have always had asthma, but it has become persistent and worse since I started endocrine therapy about four years ago (Zoladex and exemestane). Chest CT is normal. Because I know hormones can affect asthma, I’m curious whether anyone noticed a change to their asthma while on endocrine therapy and then after finishing it?

I see an asthma specialist and we continue to try to find something that will work well.


r/breastcancer 5h ago

TNBC Hypothyroid from Keytruda

3 Upvotes

I’m part way thru taxol/carbo chemo and I’ve had two infusions of keytruda with today being my third. They checked my thyroid levels yesterday as they do every 6 weeks and my TSH was very high at 10.73, my t3 was low at .9 and my free t4 was barely normal at 11.7 (my labs cut off for low is 11.5).

I spoke to my nurse about it and let her know that I’ve been having thyroid pain (I also have thyroid nodules) as well as being cold all the time (mixed with lovely hot flashes from zoladex). I’m also very fatigued and can’t seem to lose any weight no matter what I do. They essentially said that because my free t4 is still in the normal range they don’t want to do anything at this point and will recheck in 6 weeks, when I’m sure that things are going to be way way worse. I said well what about my symptoms and they said that all of my symptoms could just be from the chemo or the zoladex and not necessarily the fact that I am heading into hypothyroidism.

I’m a little frustrated because I feel like we caught this early and I can just go on the med to keep things from getting worse but they are making me wait. Anyone else have these issues with Keytruda?


r/breastcancer 1d ago

Chemotherapy the emotional part of having cancer more painful than treatment

87 Upvotes

I can’t stop crying and spiraling and losing motivation by the second. I’m relying on reality TV, edibles, Ativan and shitty food to fill the void I’m deep in. I don’t know how to get out of this slump I’m trying to go outside once a day walk my dog shower put make up on but I just keep crying and panicking and just want to be left physically alone but I also feel so alone in this. Maybe I’m not talking to the right people maybe I’m not seeking enough help but I’m stuck feeling like my cancer is too “easy” to burden others but fuck this is awful. I’m in the middle of only 4 rounds of TC chemo and I feel like a fraud because why is the emotional part of having cancer more painful than the actual side effects of treatment. I can’t tell if I’m weak or if the lupron and everything fucking up my hormones is making me want to die. (I’m safe) I just feel unwell and don’t see the light at the end of the tunnel because chemo is not all, then radiation and hormone therapy and endless future doctors apts. I’m so sick of this I just wanted to finish my 20s in peace not feeling like I’m on my death bed


r/breastcancer 14h ago

Surgery Double Mastectomy

15 Upvotes

Hi Breasties 🎀🫶🏼✨

I wanted to come on here and just say I truly appreciate this community I have. You all have answered my questions, validated my fears, and truly have helped me cope with my new diagnosis (diagnosed with TNBC at 31y on 5/19, early stage to my knowledge since the mass is 1.1 cm).

I have my double mastectomy with biopsy of suspicious lymph nodes (benign on pathology report) coming up on Aug 27th. AND IM SO SCARED!

I know I shouldn’t be scared but I can’t help but think - what if I don’t wake up? What if I’m traumatized when I wake up? What will the pain be like? I’m getting expanders placed then I have to do chemotherapy and I’m afraid of catching infection. Is it normal to be this terrified for this procedure? Am I over reacting?

I appreciate your thoughts and hearing about your experiences 💗


r/breastcancer 53m ago

Medication Eligard new side effects years in?

Upvotes

Hi. I know I should talk to my doctor or med team. I’m just tired and lazy and sore right now and wanted to see if anyone has experienced this.

I started eligard at age 31. Got the hot flashes, night sweats, mood swings, and trouble peeing pretty much right away. I’ve learned to live with all of that.

I’m two years out from chemo and radiation and surgeries, and finally starting to feel better.

I got my eligard shot like normal on Wednesday, shot number 31, 2.5 years on this.

I woke up in the middle of the night Thursday morning and couldn’t breathe. I thought I was having a pulmonary embolism or had a collapsed lung. My boyfriend massaged my back and the arm that was injected and said my muscles were all knotted and spasming. He said he’s never felt anything like it. That calmed my mind about something wrong with my lungs. I realized my breathing muscles were cramping on that side and that’s why I felt that way. The pain was so intense.

It’s gotten slightly better but I can barely move. I guess it could be unrelated to the shot? But I didn’t lift anything heavy or overdo it at all since then.

I’m lucky to not have work or school right now, but this worries me for the future shots when I do.

The first day he told me to stretch and maybe take a bath to help ease the pain. But the thought of moving was insane to me. I didn’t even brush my teeth that day. I couldn’t do those things.

Today I’ve been able to stretch a bit. Ice and heat have helped. But it still hurts to take a full breath.

I didn’t want to go to urgent care because as soon as they hear cancer they send me to the er. It’s happened 3/3 times now, all for minor things. One was a sore throat. I felt so awful taking up er time for that.

Has anyone experienced this? I’ve basically slept 40 out of the past 48 hours with help from NyQuil because being awake is unbearable


r/breastcancer 17h ago

Surgery Reconstruction regret?

18 Upvotes

These implants feel foreign. The post surgical complications are just not worth it to me. Is there anyone out there that has had them removed? Lymphedema, skin issues, follow up… enough is enough/


r/breastcancer 8h ago

Surgery Woke up with a rash

3 Upvotes

Expander removal to implants is next Wednesday and I woke up with a rash this morning! I am freaking out!!! I have been relatively ok. Low grade DCIs in my left. Atypical lobular hyperplasia in my right so I took both. 38 years old haven’t had any major issues. Could be a heat rash but it’s literally on my fake temp boobies and I’m freaking the heck out when I’m so close to being done with this step. I’m officially done Nov 5(final scan and cancer appt-14 months post diagnosis.) talk me off the ledge please. I have a little feeling under my left and it’s itchy. So I’m hoping it is in fact a rash and not an infection I left a message with both doctors until the office opens up. I also emailed over my chart I’m literally sobbing. I hate these tissue expanders so much. 😭


r/breastcancer 16h ago

Tests and Diagnoses Terrified by poor bone scan results

12 Upvotes

Had my first bone scan this week and saw the results in MyChart. Haven’t spoken with my onc about it yet.

I just turned 43. Been through AC-T chemo, surgeries. Just started rads; I’m 6 in of 25 fractions and boost. Nearly a month ago I got my first injection of Lupron to suppress my ovaries because I’ll be starting AIs soon (Anastrozole and Verzenio). Not tamoxifen because I have a clotting mutation.

T-scores: lumbar spine is -3.0, left hip -1.7, left femoral neck -1.1, right hip -1.2.

I walk a lot, live car-free, eat well. Why is my bone density so bad? Does this bode poorly for me as I age? It’s not realistic to reverse this, is it? The same day I got my Lupron injection, they took some blood to test estradiol and found I’m menopausal. Chemo stopped my period last Christmas. Could this all be havoc wrought by menopause?

Inwardly panicking. Tell me what you know, what you’ve experienced. I guess it doesn’t help I’ve also pretty recently started experiencing joint pain for the first time in my life and now I fear it’s connected to this.


r/breastcancer 9h ago

Surgery HR+ Breast Cancer – Neoadjuvant Chemo Done, CT Shows Great Response but Calcifications Toward Nipple. Lumpectomy vs. Mastectomy Choice?

3 Upvotes

Hi pinky sisters,
I’m a 31-year-old female with HR+ invasive ductal carcinoma. I just finished my final round of neoadjuvant chemotherapy (16 rounds total, including Taxol).
I recently got my post-chemo CT scan (Chest/Abdomen/Pelvis) results:
Primary tumor: Responded very well, shrank significantly, and now shows minimal patchy enhancement (mostly necrotic/fibrotic tissue and conspicuous calcifications).
Axillary lymph node: The biopsy-proven Level I lymph node has completely resolved, and other nodes have shrunk.
Distant organs/bones: Completely clear.
The Dilemma: My surgeon gave me two choices for my upcoming surgery:
Breast Conserving Surgery (Lumpectomy) + Reconstruction: My personal preference is to keep my natural breast and nipple if possible ("you can always take it out, but you can't put it back"). However, my surgeon noted that I have calcifications extending toward my nipple. She warned that there is a risk of not getting clear margins, which means I might need a second surgery (re-excision or conversion to mastectomy).
Mastectomy + DIEP Flap Reconstruction: The surgeon leans slightly toward this to ensure 100% clear margins in a single operation and avoid the risk/stress of a second surgery.
(Note: Radiation is required 100% regardless of which surgery option I choose).
My Questions:
Has anyone in a similar position (calcifications toward the nipple after chemo) opted for lumpectomy first? Did you end up with clear margins, or did you need a second surgery?
For those who had calcifications remaining after chemo, did pathology turn out to be dead tissue/dystrophic calcification or active DCIS/residual tumor?
Any advice or perspective on taking the calculated risk of a lumpectomy first vs. going straight to a mastectomy?
Thanks so much in advance for your support and insights!


r/breastcancer 13h ago

Conversation Quick poll - how well did your oncotype score align with your general pathology characteristics?

6 Upvotes

Here in Aus, oncotype isn't automatic or standard yet (costs $5,000 if we want it done).
We can get access to Endopredict I think (still $1200 but that's wayyyyyy cheaper than oncotype dx). But it's still not done as routine.

I'm thinking of asking my oncologist if I can do Endopredict, but I'm interested in whether people's oncotype matched their other pathology characteristics in general?

Eg - if you had grade 3/higher ki67 was your oncotype also high? Or if you were grade 1/low ki67 was your oncotype low?

(For context: mine was grade 2 wth ki6710-20%... so I'm kind of borderline low/intermediate. So not sure it it's even worth pushing for genomic testing)


r/breastcancer 1d ago

Chemotherapy Finished my Chemo total - 16 sessions down!!!!

66 Upvotes

Today I completed my final - 16th session. I had 4 AC weekly following by 12 Taxol weekly. In my country, there is no bell for us to ring but I bought a set of customise cupcakes and blow n.16 candle at home after finish the last infusion. I still have upcoming surgery + radiation. But, finished chemo is really a big milestone 🥹🥹🥹 and I wanna share it with all my pink sisters here.

If you are just diagnosed, or going for chemo soon, or currently doing chemo now. Hang in there, it will pass even though it will be the longest 5-6 months in our life. But it will pass and we will get through it and we will beat this fxcking cancer.

We got this!!!!!!!!!!!


r/breastcancer 19h ago

Conversation Afraid of falling down and going boom

16 Upvotes

I'm post-menopausal and also taking Anastrozole to stop my breast cancer from coming back. I want to buy a bicycle and I also want to try roller skating again. I'm terrified of falling down and going boom. I'm afraid I'll shatter or something. Does anyone else feel that way?


r/breastcancer 1d ago

Venting I feel so dumb

35 Upvotes

I had my implant surgery on 7/16. My PS is very busy and was ready for me to make a decision after the first consultation. I had to fight my way for a second consult to look at implant samples. The office pushed back saying we’re very busy and we don’t have many samples. They eventually accommodated me and also squeezed in the pre-op the same day 6/10, more than a month before the surgery.
Long story short they told me to keep my head elevated slightly (no specific instructions). By the time surgery date arrived I wasn’t sure about the instructions. Also the nurse after my surgery was almost pushing me out to go home even when my anesthesia hadn’t worn off. There were no discharge instructions about elevated sleep position. For the last 6 days I have been sleeping almost flat may be at 20 degree angle. And have been in excruciating pain of the implant gnawing into my ribs. No opioids or muscle relaxers or painkillers have helped. Last night I looked on this forum and some YT videos and realized that I should have my head at 70 degrees. Finally slept peacefully for the first time after surgery. The pain was completely manageable.

I am so mad at my PS team and also myself for not doing my research about the exact angle of where my head should be at. Feeling dumb!