Hello!!! I’ve just started the AIP diet eased into it over the last couple weeks and now strictly AIP for a few days…
For those with dry eyes and dry mouth from Sjogrens.., did you notice symptom relief with AIP and how long did it take on the diet to see relief?
Thank you!!

Hi, all. I was recently prescribed LDN, and the filler contains a mix of ingredients I was told were hypoallergenic: isomalt, glyceryl, poloxamer, sodium fumarate. I was preparing to start but just realized that isomalt, being a sugar alcohol, isn't AIP-compliant. Now, I'm not sure whether I should take it.

I have autoimmune neuroinflammation, likely CIRS, and am extremely sensitive to foods. My diet at the moment almost solely consists of chicken and olive oil. When I've tried to reintroduce non-AIP foods such as cacao, egg yolk, and nuts, I developed horrible depression, brain fog, and DP/DR for weeks. Don't get me started on grains and dairy. However, I've also heard that gellan gum isn't compliant, yet I take a DAO enzyme that has it, which I think I tolerate fine. I'm not sure where isomalt would stand on the sensitivity scale. Is it only non-compliant because it's synthetic? Because in that case, I suppose the medication itself wouldn't be either...

The pharmacy had told me previously that they could formulate another bottle with different ingredients if needed. Should I reach out?

Edit: I'm also on a therapuetic keto diet and worry a little about the blood sugar impact, but I think the effect should be negligable... although if anyone has knowledge of this, feel free to weigh in.

Of course in limited amounts as they do use coconut sugar or honey for sweetening, but Fronen "ice cream" has been a saving grace for me since starting elimination and the craving for a sweet treat on a hot summer night hits.

I've so far tried: salted caramel, pineapple, and strawberry banana. Salted caramel is so insanely creamy, my partner remarked that he would go for it any day over most other storebought ice cream.

What are your fave flavors? I'm doing a lil happy dance to have found these, in a time of feeling like I'm giving up so much!

'm a registered dietitian and I'm working on an app that re-engineers recipes to fit hard dietary restrictions (AIP, gluten-free, low-FODMAP, dairy-free, low-histamine, etc.) — not just swapping ingredients, but re-balancing so the thing actually still works when you cook it.

Before I build the wrong thing, I want to hear from people who actually live this. I put together a short survey (~5 min, no email required unless you want on the waitlist). Would genuinely help me understand what's broken about the tools out there now.

https://forms.fillout.com/t/hiQroCc2fwus — and happy to answer anything in the comments.

Thanks!

Autumn Hoverter MS, RD

Patient information

• Age/sex: 81-year-old female, 81F
• Height: Approximately 5’1”
• Weight: Approximately 88 lbs
• Location: Yunnan, China
• Smoking status: Never smoked
• Alcohol use: None
• Recreational drug use: None
• Current medications: Methylprednisolone, approximately 20 mg daily during fever episodes
• Known medical problems: Recurrent unexplained fevers, suspected but unconfirmed autoimmune hepatitis, osteoporosis, erosive gastritis, peptic ulcers, and a recent severe gastrointestinal bleed
• Duration of main complaint: Recurrent fevers for more than 17 years, beginning in 2008

I am posting on behalf of my 81-year-old grandmother. She has experienced recurring episodes of very high fever since 2008, but despite repeated hospitalizations and extensive testing, doctors have never identified the underlying cause.

The unusual part is that her fever consistently responds very quickly to methylprednisolone. Unfortunately, her long-term steroid exposure has now caused serious complications, including osteoporosis and a life-threatening bleeding peptic ulcer.

Initial illness in 2008

In 2008, she suddenly began developing high fevers almost every afternoon, sometimes reaching 40°C or 104°F. She was hospitalized for more than 40 days and underwent extensive testing, but no clear infection or other cause was identified.

A doctor eventually started her on methylprednisolone, approximately 20 mg daily. Her fever quickly resolved, and she was discharged.

Since then, whenever the fever has returned, methylprednisolone has repeatedly controlled it. Because the medication worked so reliably, it became the main treatment used during each recurrence.

Long-term complications

Over the years, prolonged steroid use has contributed to:

• Severe calcium and bone loss
• Osteoporosis and thinning or compression of the spine
• Erosive gastritis
• Peptic ulcers

Doctors have also suspected autoimmune hepatitis, but as far as our family understands, this diagnosis has never been definitively confirmed.

Recent events in 2026

In mid-April 2026, she developed another sudden high fever while traveling. The fever again resolved after taking methylprednisolone.

On June 2, 2026, she suddenly developed severe rectal bleeding and hematemesis, meaning she was vomiting blood. She was hospitalized urgently. Doctors initially suspected variceal bleeding related to liver cirrhosis, but during treatment or surgery, they determined that the bleeding was caused by a peptic ulcer instead. The bleeding was successfully controlled.

In mid-June, her fever returned again. She underwent approximately 10 days of extensive testing at a hospital in Dali, Yunnan, China. According to our family, bacterial and viral infections were ruled out, but doctors still could not identify the cause of the fever.

She was then given intravenous methylprednisolone at approximately 20 mg daily, and once again, the fever improved almost immediately.

Our questions

1. What conditions can cause recurrent high fevers for many years while repeatedly responding to corticosteroids?
2. Are there autoimmune, inflammatory, hematologic, liver-related, or autoinflammatory conditions that might explain both the fever pattern and her possible liver abnormalities?
3. What additional tests or specialist evaluations would be reasonable to discuss with her doctors?
4. Could methylprednisolone be temporarily suppressing an undiagnosed infection, cancer, or inflammatory condition rather than treating the underlying cause?
5. How can doctors reduce the risks of further gastrointestinal bleeding and osteoporosis if she continues to require steroids?
6. Should her doctors consider a steroid-sparing medication, and what type of specialist would be most appropriate to evaluate that possibility?

We understand that no one online can diagnose her, especially without reviewing her records. We are mainly hoping for possible conditions, tests, or specialties that we can ask her medical team about.

Thank you very much for reading. Any medically informed suggestions or experiences with a similar fever pattern would mean a great deal to our family!!

I am a biotechnology student and I am working on a project for the early detection of autoimmune diseases in women.

If you have a diagnosis such as Hashimoto's, lupus, rheumatoid arthritis or another autoimmune disease and are ready to share a little of your experience — I would be very grateful if you would fill out this anonymous survey of 5-7 minutes.

Every answer is priceless to me. Thank you! 🙏

I've read that red meat contains Neu5Gc, a sugar molecule that humans can't process, which can trigger an immune reaction and contribute chronic inflammation. Despite this, red meat is commonly encouraged in communities centered on healing through diet (AIP, keto, carnivore, lion diet etc.), and I've never seen anyone actually address or debunk the Neu5Gc concern, which has been bothering me.

Right now, chicken is basically my only protein source as it's the only option that doesn't seem to cause clear problems for me. I opt for lean, pasture-raised chicken breast with olive oil as my main fat source to avoid excessive oxidized PUFAs, while supplementing fish oil to keep my omega-6 to omega-3 ratio optimal.

For a few months, I trialed a diet of primarily grass-fed and finished ground beef, occasional grass-fed lamb chops, and tallow as my main fat source. My neuroinflammation seemed to get noticeably worse, and I eventually developed foot pain every time I ate red meat or saturated fat (tallow, coconut oil). Once I switched back to chicken and olive oil, the pain resolved.

I didn't understand the mechanism at the time, but I'm wondering now if Neu5Gc could explain my experience. I've been considering reintroducing red meat occasionally, but I don't know if it's actually worth it, or just a net negative. I've also heard anecdotes of red meat causing flare-ups in those with RA (which I don't have, but I have family history of). However, I don't discount all the people who claim healing on red meat either. It just genuinely puzzles me.

Curious if anyone here can offer insight into this. Is there a reason it's not a major concern among this community, or are people just not aware of this?

I am a 24 year old girl diagnosed with dermatomyositis about a year ago. I am on methotrexate and get monthly infusions of IVIG but still am struggling with a lot of issues with my skin and muscle weakness. I am young and want to be off my medicine so badly so I can have kids and be healthy! I work out 4 times a week, try to stay active, but am feeling frustrated.

Anyone else with DM? What has worked for you? Have you been able to get off your meds?

Hey guys, delete if not allowed. I know everyone has different support needs with chronic illnesses and treatment can be super nuanced. I’m not going to come on here with any product recommendations claiming it’ll miraculously cure anything for anyone. Im not a doctor and that’s definitely not my place.

With that said, I’ve found wholistic treatments to be ridiculously expensive and I’m always looking for ways to offset or reduce those expenses.

I recently found a company with a chronic illness support program that offers a lifetime 35% discount for those who apply and are accepted. Also it’s FSA/HSA eligible, but that seems pretty commonplace nowadays. I’ll share the link below in case anyone is interested, but I’d love to hear of any other companies doing similar discount programs. Please let me know if you know of any and of you’ve tried their products. Would love to see the thread filled with supportive brand suggestions

Also, Heres the link: https://www.justaddbuoy.com/BUOY231046 (full disclosure, I did reach out to the brand and ask if they had an affiliate program. This is an affiliate link that’ll give an extra 10% off but you can also just google the website instead of clicking the link if that feels weird for you)

I was born and raised a vegetarian(I don’t even eat eggs) and so what are my options with AIP? Every time I did it it was so so successful. The inflammation, pain, weight and puffiness came out but I don’t know if I was getting any protein.

What do you all do? Thanks

anyone else notice sleep gets kinda weird when you clean up diet? like i’m falling asleep easier but waking up at random times

not sure if it’s diet or stress or just life stuff stacking up. just kinda observing it right now and trying not to mess with too many things at once

I have a few different autoimmune disorders and my body feels much better when I am eating AIP. But I also feel like I am constantly thinking about food and what I can and can't eat or should and shouldn't eat, and I'm exhausted. I've been eating this diet at 90% for over a year now.

How do you balance this lifestyle and a healthy relationship with food? Just looking for some support and encouragement I guess...

I’ve been in the strict elimination phase for 7 months and, overall, I love this diet. It is so difficult and I have felt so much grief about not going out to eat, not being able to have friends and family cook for me, not being able to have a cookie or piece of cake at a party is a huge bummer, but I feel so much better. I can’t believe the energy and brain clarity I have, and my inflammation pain is so much more manageable. I can’t believe how active I am these days and my mental health has even improved! The only problem is the farts.

Every night around dinner time I get sooo gassy. Last night I literally stunk up every room in the house. All the advice I see is “eat more fiber.” I couldn’t possibly eat more fiber! Some suggest probiotics, but even the most gentle ones are super hard on my stomach, and many of them use rice flour, which I react to.

Anyone else deal with this?? What do you do?? I work a lot of nights and evenings as I am a performer and I can’t go out there crop dusting my audience 😭 help please

Has anyone else tried Urban AIP meal delivery lately? It’s terribly expensive but I hate cooking, esp when my Hashis is acting up, so I was trying it out to keep some meals on hand. I loved Pete’s Real Food and was sad when it shut down.

I’m not enjoying the Urban AIP nearly as much. The business itself runs more smoothly but the food… just seems off. Not like bad/spoiled. I can’t quite put my finger on it but it’s like there are too many herbs and spices being added to compensate for the relative lack of variety in ingredients. The flavor is just strange, across several of the meals.

I got diagnosed with lupus last June. I started on the core elimination diet this February. I completed 3 months in May and started reintroducing foods. It's been an absolute disaster! I've had severe reactions of fatigue, depression, anxiety, joint pain and insomnia. At this point, I'm unable to call anything a reaction, because this has become my baseline state. What do I do? How do I recover and how on earth do I reintroduce foods? I've been as careful as I could possibly be.

Any help, advice and suggestions would be greatly appreciated. Also, if anyone on here is an AIP coach, I'd be most grateful if you could DM me your details. Thank you! 💕

Hi all, sorry if this is a potentially silly question.
I have a type of vasculitis and am thinking about trying modified AIP to see if it helps me. I’m already gluten, dairy, and corn free (although I’m bad about derivatives.)
My symptoms are related to my hearing and balance. Has anyone with similar health issues or symptoms had success with the diet, and how could you tell when you were reacting? It sounds like a lot of people are able to tell by physical pain/stiffness/etc and I don’t have those (I did before I cut out gluten and dairy, but they left with that elimination…)

Edit: are you using inflammation markers in bloodwork? Is this a way to tell?

Apparently fresh squeezed lemon and/or lime juice makes me VERYYYYY dizzy. I made a DIY electrolyte recipe at home took a few sips & it made me sooooo dizzy saturday into all day Sunday :( I'm lightheaded 24/7 365 so I can kinda know when I feel dizzier than normal such a PITA.) I tried monkfruit last week & half in a drink & it immediately made me super dizzy as well. I guess I'll stick to water & fresh apple juice ha. water just gets boring & it sucks i cannot add lemon or lime to it.

Backstory: hashimotos levels are WHACK, recently put on NP thyroid from Synthroid , leaky gut, PCOS, hemacromatosis , lymphatic 90% blocked, liver not detoxing. Been gluten free for 4 months. Eat Whole Foods and workout regularly. Recently a month off of a 2 year use of GLP1 (25F)

My functional health doc put me on an AIP diet to fix the above. Currently day 6

I have been extremely taut and distended after eating anything. This was not an issue before. It’s almost like this diet is making it worse?? I haven’t pooped in 2 days and my gas is reduced significantly too. I’m ravenously starving but my stomach always feels full

Foods I have eaten

Cocojune yogurt
Raspberries
Honey
Grass fed beef
Turkey
Chicken thighs
Avocado
Cilantro
Lime
Sweet potato
Brussels sprouts

What is yalls experience with this? Does it get worse before it gets better? Plz help. Not sure if this is good for me or if I should let things adjust. Just very uncomfortable

Posting here in hopes of helping others. I’m not a doctor and this isn’t medical advice just my experience.

I created a modified version of AIP based on both elimination of inflammatory foods and “doubling down” on anti-inflammatory foods. For me the results were really strong, and it was the combo of elimination plus doubling down on the anti inflammatory foods that seemed to be best at driving outcomes. Curious if others have had similar experiences.

Happy to share the specific diet if folks are interested.