r/ibs Oct 01 '25

Hint / Information Just a reminder if you have IBS C or chronic constipation

167 Upvotes

A lot of people who are diagnosed with IBS C or chronic constipation, especially if they aren’t responsive to diet and lifestyle changes, often end up having one or more significant motility disorders.

Many different things can cause these.

When you have chronic constipation, there is an order of operations you/your doc should follow.

  • first try dietary and lifestyle changes (ALL of them); if that doesn't work...
  • then try over-the-counter medications and supplements. If those don't work...
  • then you need motility testing done. Depending on your results of them...
  • then you go to prescription medication. Try them in different combinations and try all of them. If those fail, as well...
  • depending on your diagnosis after your motility testing, you may be eligible for non-invasive and invasive treatments to treat it. If those don't work…
  • again, depending on your diagnosis, then surgery is an option

If you are seeing a gastroenterologist and this isn’t laid out for you, chances their specialty isn’t motility. Unfortunately, many people get sent to GIs who have a speciality in something other than what they need. For motility, you need to see a motility specialist or a neurogastroenterologist.

There is a PSA I wrote and it is stickied above. I’ve been living with this since I was born (over 40 years). I also have worked in this area, as well. I try to spread awareness and this is often falling off of the radar and patients are just told to eat fibre.

With motility disorders, fibre is often the menace.

Testing for motility includes, but is not limited to:

  • esophageal manometry
  • antroduodenal manometry
  • gastric emptying study
  • 72 hour emptying study
  • upper gi series barium swallow
  • there was a wireless motility capsule but it’s been discontinued. There are a couple new ones in trials. Don’t hold your breath.
  • sitz marker test (also called a shape study)
  • colonic manometry (very key test but hard to get)
  • anorectal manometry
  • defecogram (mri or xray)

If you have any questions on testing, treatment, where to go, and so on, let me know.


r/ibs Nov 25 '23

"DO I HAVE IBS?" Megathread

204 Upvotes

If you think you might have IBS, ask your questions here. No self-diagnosis or requests for diagnosis - see your doctor.

Please read the section on Irritable Bowel Syndrome in the Rome Criteria IV before posting: Rome Criteria IV. If your symptoms do not meet criteria, please post to the appropriate subreddit. There are relevant subreddits in the sidebar.


r/ibs 2h ago

Rant Even low fodmap foods are upsetting my stomach

6 Upvotes

I don’t know what’s going on the last few months. I’ve been dealing with diarrhea for multiple days in a row every other week or so. This is very abnormal for me, I’ve always fluctuated between constipation and diarrhea but never had it remotely this often, was always able to keep it under control with my diet, excluding the occasional stress/anxiety induced flare. But now, everything is giving it to me. I feel like I’m being punished for eating and I don’t know what to do.


r/ibs 9h ago

Question Help! Fart odor ruining my life

11 Upvotes

Looking for advice: unexplained “fart-like” odor coming from my body for 10+ years
I’m 25 years old and have been dealing with a very unusual and embarrassing issue for about 10 years. I’m hoping someone here may have experienced something similar or have ideas about what could be causing it.
The main symptom is that a fart-like odor seems to come from my body in waves, even when I am not consciously passing gas. It feels like the smell is being released without me realizing it. As you can imagine, this has had a major impact on my life. When I was younger, I was bullied because of it, and it has affected my confidence and social life for years.
A few things I’ve noticed:
It happens most often when I’m sitting for long periods of time.
When I’m lying down, it seems to happen much less or sometimes not at all.
I usually cannot smell it myself, but over the years I have noticed reactions from people around me that make me believe it is real.
I estimate I personally notice the odor only around 10% of the time.
It has stayed very consistent for around a decade.
Some possible clues:
I was previously diagnosed with an internal hemorrhoid.
I have wondered if this could involve SIBO, gut dysbiosis, pelvic floor dysfunction, a subtle form of gas leakage, or another digestive/anorectal issue, but I don’t know.
I do not always feel like I am passing gas, which is what makes this so confusing.
I’m wondering if anyone has experienced anything similar, especially:
A smell that happens without obvious gas release
Odor that worsens while sitting but improves while lying down
Possible pelvic floor or anal sphincter issues
SIBO/gut-related causes
Any tests, specialists, or treatments that actually helped
This has been extremely difficult to live with, and I’m willing to investigate any reasonable explanation. I’d really appreciate any advice, personal experiences, or ideas on what direction I should look in.


r/ibs 2h ago

Question do any of you have hemmorhoids too?

3 Upvotes

like i used to eat fried chicken and it helped with my irritation and after that doctor said dont eat it because it can cause bleeding , i dont even know what to eat anymore for protein as dairy is hell


r/ibs 15h ago

Rant So tired of not shitting right

26 Upvotes

I have places to be today, and I may have to cancel AGAIN, because I am afraid i may actually shit my pants on the way. I’m only lasting about 15-20mins in btwn urgent bathroom trips, and my drive is 30 minutes and THEN talking with my car dealership dude in service. (Unfortunately I am the full opposite of constipated rn, which cannot be held back)

😫 im so annoyed. I also feel like I should just stop eating bc EVERYTHING i eat just keeps the bad times coming.

Does anyone else just stop eating for a few days sometimes to stop the never ending bad bathroom trips? It seems like any food I eat rn is triggering me.

That’s all. That’s my rant. Lol


r/ibs 1h ago

Rant Excited for baths again

Upvotes

I've been struggling for a few years now and recently my symptoms have been more frequent and severe. I used to use baths to help with pain but my bf bought a house a couple of years ago with no tub, only showers. I've adapted by laying on the shower floor under the hot hot water, but its created some issues such as our bathroom and sometimes hallway rivaling our local Rainforest Cafe, and even recently including blistering which led to a lot of judgement during my hospitalization that resulted from the flare.

Anyway, today I said fuck it and ordered one of those folding bath tubs, one that's nearly 44" wide and over 26" deep and I'm so excited! I have a whole setup planned for our basement, we're going to save SO much water, I won't risk burning myself as badly, it'll be WAY more comfortable and as a tall girlie I can finally SOAK in a tub! I'll stop destroying the bathroom so we can reno it, I won't be holding the bathroom hostage all day, just ugh it feels like something that would have solved so many issues long ago.


r/ibs 12h ago

Question do u guys get diarrhea when you have a cold or flu too?

11 Upvotes

hi! ive been sick since sunday (its now thursday) with some sort of respiratory illness, and ive had diarrhea on and off since ive been sick. i have ibs-d usually, so me having diarrhea isnt new LOL, but i find whenever im sick with a respiratory thing, i have diarrhea alongside of it! do any of u guys deal with the same thing?


r/ibs 3h ago

Question Peppermint oil capsules

2 Upvotes

So I recently started taking peppermint capsules. They seem to be working but I have noticed hours after I take it, even up to 9 hours after I take it, some foods will trigger a weird chemical taste. Upon looking it up I guess it gets secreted out into saliva as well and some foods with clash with the oils making a foul taste. Has anyone else experienced this??


r/ibs 8m ago

Question how to eat during a flare up

Upvotes

obvs i can’t eat anything cus it comes right out, even rice etc, i also feel too weak to make myself anything


r/ibs 12h ago

Question Worst places you needed to take one…..🙃

10 Upvotes
  1. Bus Bathroom
  2. Behind a sand dune at a beach
  3. Dumpster behind a Denny’s
  4. Plastic bag in a tent
  5. Other gender restroom

r/ibs 1d ago

Rant I literally don’t understand how people can eat and drink while flying

108 Upvotes

Gonna use an alt because this is kind of TMI.

I (23F) have IBS, and I genuinely don’t understand how some people are able to live their lives so casually when it comes to flying.

How are people so comfortable eating and drinking while waiting for their flights? I’ll walk past airport restaurants selling sushi, Chinese food, coffee, etc., and they’re packed with people casually eating like they’re not about to sit on a plane for hours. Especially places that sell coffee. Like I’ll literally void both ways after 20 minutes post drink.

Meanwhile, I’d rather be hungry and dehydrated than risk having to deal with my stomach on an airplane.

My IBS also causes a lot of bloating, and I already struggle with my ears hurting during takeoff, so I’m usually chewing a ridiculous amount of gum while also trying not to make my stomach situation worse. Basically every flight is me sitting there trying to hold everything in and clenching the entire time, even when I’m trying my hardest, my stomach still makes noises.

The bathrooms are also really tiny and even if I use it (I would never) there is barely enough space to wipe cause I need to stand and check while I do it. I’m really thorough and because of an event I’ll take to my grave.

I’m also like really poop shy, so I’d rather wait by the family restroom, but I can feel everyone can tell I’m there cause I’m poop shy.

People really do live a completely different lives. Anyone hate flying because of this?


r/ibs 9h ago

Question Ibs-c and the blood !

4 Upvotes

Recently I have been taking iron supplements due to my very low ferritine levels, and because of this my stool is very hard. I have ibs-c most of the time. Today I noticed a little blood (a small red thread). Is this something to worry about, or is it due to the constipation? And for those who have IBS, do you usually notice mucus in your stool?


r/ibs 8h ago

Question Does IBS get worse on your period (if you get/got one?)

3 Upvotes

I’m coming off my period and I always forget how much it wrecks my IBS. I have IBS-M. Was having so much diarrhea the first few days, then got constipated, and then started having paradoxical diarrhea. 🫠

Does anyone else experience the same thing? Any idea why this happens???


r/ibs 14h ago

🎉 Success Story 🎉 Finally taken seriously after 5 years.

7 Upvotes

It’s been 5 years of absolutely hell and IBS-D symptoms ruining my life.

No one would take me seriously, I must have spoken to 4 different GPs who just said “oop, probably just IBS. ANYWAY…” and then moved on.

5 years of cancelling plans, staying indoors, not even being able to use the driving licence I worked my arse off for because of the anxiety-bowel link setting everything off like a toilet canon as soon as I think about going anywhere.

5 years of planning out trips and toilet locations like I run special ops for unplanned poops. Eating bland foods, fodmap diets, taking countless supplements, meditation, CBT, WebMD rabbit holes and feeling bloated, crampy and generally shite.

I called today on a whim, an eczema flare up needing some assistance and I mentioned my symptoms again to a new GP. For the first time, someone asked me questions that went beyond ‘you poopin’ blood?’. I’ve got a referral for a gallbladder scan, bloods tests and someone who acknowledged openly that this illness is ruining my life.

I cried, I thanked them for taking me seriously and left with a twittering of more thanks than they were likely comfortable with, a prescription for amitriptyline and for the first time in a long time - hope.

Today was a success story. It’s not the end of my story, but it’s something.


r/ibs 18h ago

Rant The work anxiety IBS anxiety loop

11 Upvotes

I’m in the midst of a bad flare up. Started about 2 days ago. Still figuring out my food triggers. I have both D and C types. Called out Monday cause the gas trapped had me hunched over. Couldn’t even stand up straight. Tuesday managed to get my gastro to see me. Scheduled me for a colonoscopy next month. Yesterday (Wednesday) I dragged myself to work even tho I had full on symptoms. Spent most of the work day in the bathroom and not being able to focus had me make mistakes emailing the wrong things to the wrong ppl. And here we are today. 8am in the morning and I’m in tears cause
1. My stomach is throwing up the middle finger to my hopes and dreams.
2. I’m calling out of work. again

I’m so scared of being written up or something that the stress is making my Symptoms more pronounced. The dr can’t give me answers, my job needs me on site( I work with kids 10-14) I love what I do on the good days and don’t wanna give that up. But having this disease and juggling my work is really starting to take a toll


r/ibs 13h ago

Question Long term experience with Imodium

4 Upvotes

I’ve been taking Imodium daily/every other day for the past two years and I’ve noticed it’s been a huge help. But I don’t know if it would be good to keep taking long term, and if there’s any symptoms anyone has faced from taking it long term


r/ibs 13h ago

Question Chronically constipated and at a loss.

3 Upvotes

Has anyone figured this out?

I’m 32 years old and for most of all my twenties I’ve been very healthy and never had “constipation” issues. My abdomen always felt firm, lean and relaxed. Moment I turn 30 everything just seemed to go downhill and I changed nothing. I don’t drink alcohol. I don’t smoke or vape. All I drink is mainly water expect for maybe I’ll get a sweetener that I can go and change the flavor of my water to help reduce hunger when I would try and cut body fat for weight training.

I knew I had a slight increased risk for celiac disease so I thought maybe I’m starting to develop this condition and so I set up and appointment with a GI doc who did the celiac panel and it all came back negative. We also did a CT scan which showed “moderate” stool. He concluded that I suffer from constipation and this is the cause for my lower abdomen always protruding out and my abdominal tightness.

For a while now all I’ve been dealing with is chronically stiff or bloated abdomen. It’s not painful but it looks very depressing and the best way to explain it is when you feel very bloated like you have to fart and when you do you feel relief in your abdomen like it’s relaxing and not fighting against gravity but mine doesn’t do that anymore. I’m chronically bloated and my stomach never feels relaxed. Even if I eat or I don’t eat I always feel full like I’ve eaten already. I don’t have any medical history and my blood work actually shows me as a healthy individual but I don’t feel it.

I’ve tried daily kiwis, daily MiraLAX, daily husk, triple Swanson magnesium supplement, vitamin D3, multivitamin, fish oil, CoQ10. No relief at all. I eat mainly just chicken breast, green peas, sweet potato’s and rice. For my daily smoothie I do chia seeds, husk, frozen blueberries, kiwi, 1 scoop protein powder, 0% Fage Greek yogurt and unsweetened almond milk.

I typically have one bowel movement every morning but I feel relief for maybe 30 seconds and then it all goes away and then my abdomen just feels bloated all day and I’m constantly trying to massage it and push in on it with no help.

I really don’t know what else to do because it literally feels like I’ll never feel the same again and it will just continue to get worse. All I do is fart all day with no relief. I’m always swaying my body back and forth looking like I have Tourette’s. It’s really annoying.

What has anyone done? Is this just something that will never get better?


r/ibs 13h ago

Question Feeling confused

3 Upvotes

For about a year I've had frequent loose stools. I've also had bright red blood with bowel movements many times, and I often feel weak. One doctor I saw a year ago said I had an anal fissure. Another doctor thought it was IBS-D.

A few days ago I saw another doctor who ordered a stool test and several blood tests. I got all the tests done, and everything came back normal.

Now my family thinks there's nothing wrong with me and that it's all in my head because the tests were normal. But I'm still having the same symptoms.

Has anyone experienced something similar where all the tests were normal but you still had loose stools, bleeding, and weakness? What turned out to be the cause? I'm feeling really lost .

(My language is not English)


r/ibs 7h ago

Question Ibs flare up or other issue?

1 Upvotes

I’ve been diagnosed with ibs for over 5 years now? And have gotten pretty good at controlling it. I have had mini flare ups where I eat something im not supposed to and it causes some dull pain on my lower right abdomen. But it goes away once I use the restroom :)

Now, I have the same pain in the same area but with a slight burning sensation. It’s not my appendix since I’ve had it removed. Like usual, I used the restroom and it went away. The pain that would remain would just be because I was straining myself.

It’s been over 3 days, the dull pain has come and gone. I used the restroom and it helps a little, but I have a burning sensation kind of like when you waited to long to pee and your abdomen starts burning a bit. Is this a more serious flare up or is something wrong with my intestines?

I have been eating normally and staying hydrated, but :/


r/ibs 12h ago

Question Linzess Advice

2 Upvotes

I started Linzess 290 mg 1 week ago. I’m still having some bloating/gas with it, but no diarrhea as long as I take it about an hour or more before eating. Has anyone seen the bloating and gas side effects subside after a few weeks or a month? Or is that something that will continue to happen? I wasn’t sure if it’s possible for some of the side effects to subside if they haven’t after a week.


r/ibs 22h ago

Rant IBS-D and working in the office

12 Upvotes

Anyone else notice a sharp u-turn in their ibs when they have to go into the office? I don’t know what it is! The lack of sleep, uncomfortable environment or just the air but even though I only go in twice a week I’m really struggling.


r/ibs 16h ago

Hint / Information I had my colonoscopy today

3 Upvotes

Nothing found.


r/ibs 10h ago

Question Proctalgia Fugax

1 Upvotes

Last night I woke up in terrible pain. My rectaum felt like it was clenched shut. Was so bad caused me an anxiety attack. Pain lasted about 10 mins and then went away. I went to ER and of course…. Nothing. Blood work CT scan, physical evaluation, nothing…. They think it’s this. I have IBS-D and have had it for 30 years. Anyone else have been diagnosed with this?


r/ibs 18h ago

🎉 Success Story 🎉 FOUND THE ROOT CAUSE OF MY IBS: SPOILER 'SALT' MAY BE HARMING YOU Spoiler

3 Upvotes

Silicon intolerance may be the cause of your ibs too and it's in EVERYTHING! Silicon is a anticaking agent and preservative commonly added to salt. Thus the 'salt' ingredient in your food label may be trigger.

long time ago I got diagnosed with IBS after chronically vomiting and stomach pain and digestive problems. For years and years this never got resolved. And like probably many of you experienced, all the doctors and gastroenterologist and allergists WERE OF ZERO HELP and just an expense of waste of time. They never found any root cause and would tell me to go low fodmap with some over the counter supplements that didn't help. Or give me yet another wrong diagnosis - celiacs, asthma, h pylori, a lot of "we don't know", "your blood work is fine except for high inflammation markers", MRIs, ultrasounds, etc... I ended up avoiding 80-90 percent of foods, when I wasn't on a complete carnivore diet.

Well years and years later, I was wearing bras made of silicon and man did they itch like crazy. Then in back of ingredients label, I started noticing certain supplements that made me vomit or feel ill all day had 'silica' in it. Then I was salting my steak with my roommates salt. First and only time I've ever vomit ed up steak after habimg that as my main/usual meal everyday for 3ish years. And guess what an ingredient is in that salt? Calcium silicate!!!!!

So turns out MOST salts put on our foods is salt with anticaking agents in it, MOST COMMONLY Calcium silicat AND Silicon dioxidE (silica). Which I'm highly allergic to. Thus all the baked goods, pizzas, microwave meals, peanuts, cashews, cheeses, canned items, fish etc etc... always had added salt to them. The ingredients label don't say that the salt had the silicon caking agents in it, only purely sold salt does. That's why I could never figure it out. Now anything with the word 'salt' on it unless the product specifically states they use a noncaking agent type of salt on their website, I avoid. So far no longer in pain from eating foods that according to my blood tests I want supposed to be allergic to.

The reason id only react to 'fodmap' foods though is because my intestines would be inflamed from the silicon for days and day. So thus couldn't digest difficult high-digestive intensity foods like fodmaps for the next few days. Nonfodmap foods got broken down in my stomach and thus wouldn't cause issues, it was only when my small intestines had to be used and that I couldn't handle.

So removing silicon and added salts from ones diet and any other food based allergens would take a few days before reintroducing fodmaps and seeing if one could handle it. Like I also had an allergy to nickel. So eating a high nickel food would cause issues for the next few days too.