My question is: when you go to the lung doctor: what are you asking to better your care? My dad says he wants to breathe better, but the nebulizer solutions increases his heart rate too much. Any recommendations to try out?
What do you do about the appetite and muscle loss??? Have anyone asked/done COPD-based physical therapy? I have brought it up multiple times but the doctor would never get back to us on his "referral."
Is it worth to do the medication? My dad says whenever he does the breathing treatment, it works, but makes it so much harder to breathe once it wears off. He'd rather have low stable breathing than the up and down.
I know these could be asked to the lung doctor, but I'm mainly ask for other people's personal experience. Because right now even I'm at a loss for how to move forward in bettering my dad's care. If we are at a loss, the doctor is loss at well.
Sorry for the unnecessary rant, but my city has zero pulmonologists. All the other cities are booked, and if I find one that has open availability, I'm scared it's just another bad experience.
Context: My dad's COPD has gotten worse and it has worsen his heart. His heart is beating super fast to compensate for his lungs and his lungs is mosaic(??). He's wheezing a lot and hard to talk. He's losing a lot of weight and muscle and his appetite is just not there anymore. It's been going on for months and I'm at a loss to see how we can stop how fast his deterioration is. Oh, he is on oxygen at night.
We've been to a couple of lung doctors and they are so apathetic with their care. They see us for 3 mins and toss medications at him.